My Honest Letter to NMOSDDear NMOSD, I’m wondering why I was chosen to be a victim of such a horrific disease. I know I’m a strong...reactionscomments
My Tips for Your First Spinal Tap: What to Expect and How to PrepareI had my spinal tap whilst staying in hospital during my first NMOSD attack. I wanted to avoid it as much as...reactions7comments
Newly Diagnosed with NMOSD: First Steps & TreatmentsSo, you've been diagnosed with NMOSD. What do you do now?I was diagnosed with NMOSD in the middle of a pandemic. Looking...reactionscomments
My First NMOSD Attack: A Personal Story of MisdiagnosisEveryone's NMOSD journey can be extremely different or very similar. From what I've seen since joining this amazing site, is that my...reactionscomments
Living with NMOSD: Finding My New "Normal"I'm moving into the second year of my NMOSD diagnosis. It may seem like it was a long time ago to everyone...reactions2comments
My Baclofen Pump Surgery for NMOSD: What to ExpectDeciding to place a baclofen pump in my body wasn’t an easy decision, but it was a necessary one. Due to the...reactions2comments
Eating Well with NMOSD: Energy-Saving Tips for Kitchen SuccessHaving nutritious snacks handy can help when you reach that exhaustion point with neuromyelitis optica spectrum disorder (NMOSD), where cooking seems impossible...reactions1comment
My Journey With Plasmapheresis For NMOSD: What To ExpectPlasmapheresis is a complex therapy that I’ve undergone four times in my journey with neuromyelitis optica spectrum disorder (NMOSD). Every time I’ve...reactions7comments
My Spinal Tap ProcedureI laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still...reactions1comment
NMOSD & Staying PositiveStaying positive when things with neuromyelitis optica spectrum disorder (NMOSD) seem like they are going wrong is difficult. I feel that we...reactionscomments
Battling My First Winter With NMOSDI live in Scotland, and we have bad weather in general. Still, this has been one of the coldest winters we have...reactions8comments
Tips For Your First MRI ScanGetting an MRI scan for NMOSD can be scary. It could be because of the size of the machine that you’ll be...reactionscomments
Combating MRI AnxietyThat first MRI was taken upon my initial NMOSD attack. What they told me was that I would be in a big...reactionscomments
NMOSD and The Impact On Our CaregiversNMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version...reactionscomments
Immunosuppressants: What's the Point?There is a standard plan of care when you are diagnosed with NMOSD. It's very straightforward. Get diagnosed, get on steroids until...reactions2comments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for...reactionscomments
OMG! I Found My NMOSD Community!Like many, I felt very alone when I received my NMOSD diagnosis. It was a disease that I had never heard of...reactionscomments
Talking About NMOSD: An Elephant In The HouseThroughout this process of living with NMOSD, mental health has been like the silent elephant in the house for my family. As...reactions2comments
A Handy NMOSD Patient Information FormFrom my experience, hospitalizations and NMOSD go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often...reactions3comments
The Challenges of Seronegative NMOSDNeuromyelitis optica spectrum disorder (NMOSD) can have a variety of different symptom types, severities, and patterns. Since each person's experience with NMOSD...reactions1comment
