My Baclofen Pump Surgery for NMOSD: What to ExpectDeciding to place a baclofen pump in my body wasn’t an easy decision, but it was a necessary one. Due to the...reactions2comments
My Journey With Plasmapheresis For NMOSD: What To ExpectPlasmapheresis is a complex therapy that I’ve undergone four times in my journey with neuromyelitis optica spectrum disorder (NMOSD). Every time I’ve...reactions7comments
My Spinal Tap ProcedureI laid on a flatbed in a curled baby fetal position and was told by the anesthesiologist to try and stay still...reactions1comment
NMOSD & Staying PositiveStaying positive when things with neuromyelitis optica spectrum disorder (NMOSD) seem like they are going wrong is difficult. I feel that we...reactionscomments
Battling My First Winter With NMOSDI live in Scotland, and we have bad weather in general. Still, this has been one of the coldest winters we have...reactions8comments
Tips For Your First MRI ScanGetting an MRI scan for NMOSD can be scary. It could be because of the size of the machine that you’ll be...reactionscomments
Combating MRI AnxietyThat first MRI was taken upon my initial NMOSD attack. What they told me was that I would be in a big...reactionscomments
NMOSD and The Impact On Our CaregiversNMOSD affects everyone who lives with the disease in different and often awful ways. Where do I start? You lose a version...reactionscomments
Immunosuppressants: What's the Point?There is a standard plan of care when you are diagnosed with NMOSD. It's very straightforward. Get diagnosed, get on steroids until...reactions2comments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for...reactionscomments
OMG! I Found My NMOSD Community!Like many, I felt very alone when I received my NMOSD diagnosis. It was a disease that I had never heard of...reactionscomments
Talking About NMOSD: An Elephant In The HouseThroughout this process of living with NMOSD, mental health has been like the silent elephant in the house for my family. As...reactions2comments
A Handy NMOSD Patient Information FormFrom my experience, hospitalizations and NMOSD go hand-in-hand. My relapses never seem to happen during “normal business hours," so my neurologist often...reactions3comments
The Challenges of Seronegative NMOSDNeuromyelitis optica spectrum disorder (NMOSD) can have a variety of different symptom types, severities, and patterns. Since each person's experience with NMOSD...reactions1comment
Eating Healthy Without Breaking the Bank!As we all know, managing your nutrition as someone who lives with NMOSD is super important. Some people with NMOSD who have...reactionscomments
Visiting The NMOSD ClinicThe hospital in my city does not have a NMOSD specialist, NMOSD nurses or an NMOSD team. My neurologist is an MS...reactionscomments
Things I Wish I Knew When I Was First DiagnosedBeing newly diagnosed with neuromyelitis optica spectrum disorder (NMOSD) can be scary, but staying optimistic is key. I remember feeling shocked, lost...reactions1comment
Frustrated With NMOSD Vision LossSome days I forget I have vision issues due to NMOSD, and some days I feel like it’s thrown in my face...reactionscomments
Moving Through NMOSD ChallengesI just need to vent about NMOSD challenges and frustrations. I need to speak my truth and say out loud what’s building...reactions1comment
A Dark NMO Future Created by My MindThe future: sometimes things get better and sometimes they get worse. We have our ups and downs and everything in between. One...reactionscomments
