Dealing with the Rarest of RareSo here I was on the 5th the day of my ICU stay, waiting for some news on the numbers of tests...reactionscomments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons...reactions11comments
The Neuropathic ItchNeuropathic itch is a somewhat common symptom in people who live with neuromyelitis optica spectrum disorder (NMOSD). NMOSD is a nervous system...reactions4comments
Simplicity and What NMO Does to ItBeing diagnosed with NMO changes your life in so many ways, including how you live day-to-day. Something as simple as doing dishes...reactions1comment
Vacation Tips With NMOHaving a a medical condition like neuromyelitis optica (NMO) can sometimes make traveling a little difficult, or possibly a little uncomfortable. So...reactionscomments
Intimacy and NMO: Tips and TricksThe conversation around NMO and intimacy can often be seen as taboo, but let's be real: it needs to be had. Here...reactions1comment
I Took a Shower TodayTaking a shower when you live with NMO is a big deal. Few people understand why taking a shower could be an...reactions1comment
Tips for Managing Headaches With NMOHeadaches are one of the most commonly reported symptoms from people with NMO, especially before they have an attack. I am no...reactions1comment
The NMO Symptom I Experience Most: SpasticitySpasticity for me has been a primary indicator that something is wrong with my body. When I was diagnosed with NMO back...reactions9comments
My Experience With SpasticitySpasticity was one of the first symptoms I experienced before I was diagnosed with NMO. After being diagnosed time passed my spasticity...reactions6comments
Living With NMOSD SpasmsAs if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know...reactions30comments
How NMOSD Affected My Favorite HobbyI remember being 12, hiding in my mother’s room, and using all her makeup without her knowing. I wasn’t good at it...reactions2comments
My Experience with RituximabI received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive...reactions11comments
NMO Life Hacks: Mobility AidsLife with NMO is far from easy. All too often, each attack leaves us with some form of permanent disability. Our mobility...reactionscomments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar...reactions3comments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me...reactions3comments
The First MRI After My AttackI was referred for an MRI of my brain and neck after a little NMO scare in February of this year. I...reactions2comments
Driving With NMODriving, for me, is an essential part of life. Especially where I live. It’s how I transport my kids to and from...reactionscomments
Don't Forget About You!Oftentimes when going through a difficult transition, like adjusting to life with NMO, we tend to forget about ourselves. We forget that...reactions2comments
NMO Awareness Month: Our Time to SHINE!March is NMO Awareness Month! Now more than ever, let us come together and use our voices to bring more awareness around...reactionscomments
