What NMO Has Changed In My LifeNMO has changed me in many ways. From odd ways of saving me to taking away things I love. Some things I had to learn to give up and others... By Dan Marino2 min readBookmark for laterReactions 0 reactions Comments0 comments
My Anxiety With NMOSometimes, it’s like my brain is in a revolving door. The thoughts spin fast, sometimes slow or not at all. My brain’s exhaustion is from my thoughts constantly dancing pirouettes... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments0 comments
How NMOSD Affected My Favorite HobbyI remember being 12, hiding in my mother’s room, and using all her makeup without her knowing. I wasn’t good at it at all, but after years of practice I... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments1 comments
What Is Medical Gaslighting?If you have ever felt dismissed by a doctor, you may have experienced a type of bias (prejudice) called medical gaslighting. Medical gaslighting can happen to anyone, but it most... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments1 comments
Driving With NMODriving, for me, is an essential part of life–especially where I live. It’s how I transport my kids to and from school, activities, my medical appointments, work and more. I... By Aldelly V.2 min readBookmark for laterReactions 0 reactions Comments0 comments
What Does Self-Advocacy Mean?You constantly hear the phrase that you need to advocate for yourself with doctors and in appointments you hear how you need to stand up for yourself. And, if you... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
Worsening Vision Confirmed By Eye TestsIt had been a little over a year since my last visit and I was excited for new contacts. My eyes have been a little off but I figured I... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
My NMO Travel Blog ExperienceI was working in management for a charity organization in 2014 when I had my first Neuromyelitis Optica attack. I haven’t been able to work conventionally since. That's due to... By Helen Lear-Grant2 min readBookmark for laterReactions 0 reactions Comments0 comments
I Have Mental Health Issues and It Is OKBy definition, mental health is taking care of psychological, emotional, and social well-being but for me (mine slightly injured mental health) was an inseparable friend that I’ve had for a... By Kshirja Singh3 min readBookmark for laterReactions 0 reactions Comments0 comments
NMO in Children and AdolescentsNeuromyelitis optica spectrum disorder (NMO) is a disease that affects the central nervous system. NMO breaks down a protective coating around neurons that helps them transmit signals, called myelin. NMO... By Editorial Team 3 min readBookmark for laterReactions 0 reactions Comments0 comments
Adapting My Home Fabulously For NMOOver the triumphs and tribulations of dealing with NMO, I’ve had to adapt my home. Thankfully, I have a handy husband who love home projects (said no husband ever) and... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments1 comments
My NMO Relapses Are Slow BurnersMy first neuromyelitis-optica attack seemed to happen rapidly and dramatically. Although I had known something was wrong for months, it was only 48 hours from realizing I couldn’t pee to... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments
Visiting Pakistan For The First Time After My DiagnosisI was born in Scotland, but my mother is from Pakistan, so I have a lot of family there including my grandmother. I haven’t been out of the United Kingdom... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Going Out With FriendsAt just 19, I was diagnosed with NMO, which as I’m sure many of us know are the prime party years. These are the years where you go to college... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
My NMO Diagnosis StoryI knew something was wrong for a couple of months. I kept making appointments with my doctor to discuss new symptoms that were appearing daily. First, it was searing hot... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments1 comments
Public Speaking Gave Me PurposePublic speaking is one of the most feared things in the human race. We are so fearful of the judgment of other people that speaking to large groups of people... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments0 comments
5 Tips For Self-Advocating At The Doctor’s OfficeI've learned a few things about self-advocacy since the beginning of my journey with frequent doctor’s visits. It can be intimidating to ask questions during your medical appointments because you... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Media Gave Me a VoiceBeing diagnosed at 19, I didn’t have much of a voice. Let’s be honest–I was still coming into adulthood, figuring out who I was, and my place in this world... By Avery Allmond4 min readBookmark for laterReactions 0 reactions Comments0 comments
An Emotional Travel Experience Going HomeWell my trip to visit my mother is winding down and it’s been quite a trip. My emotions have been on red alert and life took me down hard. From... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments3 comments
MourningI scroll through this website every day, seeing pain in different types and forms. People will talk about life before their NMO took over. Something that we don't talk enough... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments2 comments