Dealing with the Rarest of RareSo here I was on the 5th the day of my ICU stay, waiting for some news on the numbers of tests...reactionscomments
Getting Plasmapheresis For NMOPlasmapheresis is a complex therapy which I’ve undergone four times in my journey with neuromyelitis optica (NMO). Every time I’ve completed a...reactions5comments
I Feel Alone with a Rare DiseaseLiving with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first...reactionscomments
Prioritizing My HealthBeing back in New York is almost like a gift. It just feels so right. But also being back means I need...reactionscomments
Feeling Discouraged with Physical Therapy ProgressThrough my journey with neuromyelitis optica (NMO), there have been highs and lows. For me it has been 10 years since I...reactionscomments
Embracing Change With Neuromyelitis OpticaI've certainly had my share of unexpected twists and turns since my diagnosis with neuromyelitis optica (NMO). This autoimmune disorder shook up...reactions2comments
Record Your JourneyI record everything. Since the day I was diagnosed with neuromyelitis optica (NMO), I have always felt the need to record and...reactionscomments
Medical Gaslighting and MeEver since I was a child, my life has been nothing but a comedy of medical errors. I am one of those...reactions2comments
Health Literacy and NMOSDReceiving a chronic health diagnosis changes your priorities. Learning about the disease and how to advocate for yourself becomes critical. This is...reactions1comment
A Toast To CaregiversIt’s been a long journey with neuromyelitis optica (NMO). I’ve had to learn how to better help my health and learn new...reactionscomments
My First Shopping Experience In My WheelchairConfidence is the most beautiful aura one can wear in public. The feeling of wearing an invisible security blanket around yourself and...reactionscomments
From Misdiagnosis to DiagnosisGetting a diagnosis for a mysterious ailment can feel like searching for a needle in a haystack. It's frustrating, disheartening, and sometimes...reactions2comments
Bring On The Love This HolidayIt’s been several years since my last full blown family holiday season. Now that I think about it, been about five years...reactionscomments
Meeting My Service PupThe first year of my diagnosis was rough. I’ve never felt so alone, so unwanted and so broken in my life. The...reactionscomments
My NMO Christmas ListMy neuromyelitis optica (NMO) wish list: As the iconic song “All I want for Christmas is You” by Mariah Carey goes, it opens...reactionscomments
How Sex Bias Affects NMOSD Progression and TreatmentEditor’s note: In this article, we use the word "woman" to refer to people with 2 X chromosomes and "man" to refer...reactionscomments
Trust Your Voice: Understanding Medical Gaslighting and NMOImagine going to the doctor for help, but they don't take your symptoms seriously or tell you it's all in your head...reactionscomments
My Tips For Your First Spinal TapI had my spinal tap whilst staying in hospital during my first attack. I wanted to avoid it as much as possible...reactions7comments
Shining a Light on Your NMOSD ExperienceWe want to learn more about our community members living with neuromyelitis optica spectrum disorder (NMOSD). Each NMOSD journey has common threads...reactionscomments
NMO and Covid…AgainThe day I heard Covid was poking its head out again in the news, I got it. My friend went back to...reactionscomments
