How my Suffering from NMO Impacted my DaughterI had just gotten out of the hospital. I informed my daughter that 2nd dose of the Corona vaccine had triggered the NMO. Now, my immune system, which was supposed...Reactions0reactionsComments5 comments
NMO Treatment and AnemiaNeuromyelitis optica (NMO) does not have a cure. But there are treatments aimed at preventing attacks or reducing relapses. Unfortunately, sometimes these medicines can have harmful side effects. One serious...Reactions0reactionsComments1 comments
Goodbye and Hello AgainAfter being diagnosed with NMO, change has been very scary to me. It took more of my vision with every attack. With each bit of vision loss, I started to...Reactions0reactionsComments3 comments
Bipolar 2, Exposure Therapy and NMOSomething never felt quite right when I was diagnosed with NMO at 19. This was before I was diagnosed with bipolar 2 disorder. Part of the NMO diagnosis process meant...Reactions0reactionsComments0 comments
A Few Weeks Before My Next InfusionWith all honesty, the day I was told I would receive the rituximab infusion every six months, I thought it would fix all my problems caused by NMOSD. My neurologist...Reactions0reactionsComments8 comments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class - like paint, draw, pottery, or anything else...Reactions0reactionsComments2 comments
NMO In The Eyes of A 9-Year-Old: Before My DiagnosisMy daughter was 2.5 years old when we left Australia. She, her daddy, and I returned to our hometown in India in 2016. Post that, she was and is the...Reactions0reactionsComments0 comments
Going to School With NMO: Taking Closed-Book, Memory Based ExamsIt has been almost three years since I’ve had any real exams in school. For the past two years, due to Covid and my NMO diagnosis, I did not have...Reactions0reactionsComments0 comments
My Wheelchair Is My FreedomNot everyone diagnosed with neuromyelitis optica, or NMO, will need to use a wheelchair. However, some people do become full-time wheelchair users, and some people, like me, might use a...Reactions0reactionsComments0 comments
Postpartum Before NMOPostpartum is a roller coaster of emotions for most mothers after giving birth. Some can manage on their own. Others need a bit more help to get through. I certainly...Reactions0reactionsComments0 comments
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do. For those with an "invisible" illness, or one...Reactions0reactionsComments0 comments
Ways I Reduce StressAs time has passed, I have picked on certain things that trigger my body into an NMO flare. My biggest trigger at the moment is stress. It’s unfortunate that I...Reactions0reactionsComments2 comments
The Dream: Couch Pennies, My NMO NonprofitAt the age of 13, I was a young and healthy teenager. At the time, YouTube was still very new. Like many kids my age did at that time, we...Reactions0reactionsComments1 comments
Getting One Step Ahead of NMOA word of advice: be prepared for anything when living with NMO. As scary as this may sound, the fact is that there's simply not enough information to know everything...Reactions0reactionsComments0 comments
The Art of Living with NMOSix years ago, NMO attacked my optic nerves and left me without functional eyesight for nearly a year. In a matter of moments, my entire world was flipped upside-down. Losing...Reactions0reactionsComments3 comments
Traveling with NMO: My Top 5 TipsLiving with neuromyelitis optica (NMO) doesn’t mean you have to say no to adventure. It just takes a little more planning. As a Scotland-based disability travel blogger, I’m a big...Reactions0reactionsComments0 comments
So A Blind Man Walks Into A…Why is humor the best medicine? I was inspired to write this piece because of a project I am working on with one of my leads, Olivia. Shockingly, she thinks...Reactions0reactionsComments0 comments
Moments Leading Up to My NMO DiagnosisAnxiety, fear, desperation, confusion, and craziness were the heaviest feelings present in me in early 2016 before my NMO diagnosis. I was having so many symptoms. I couldn’t figure out...Reactions0reactionsComments7 comments
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s something you can’t find a lot of information...Reactions0reactionsComments2 comments
How I Manage My NMO Without A CaregiverThe life of someone with NMO without professional support is hard. Dealing with any chronic illness is hard. Not only is it hard on the patient, but it's also just...Reactions0reactionsComments2 comments