Keeping Your Medical Records OrganizedKeeping track of your medical records is essential for your health, especially when you or your loved one has neuromyelitis optica spectrum...reactionscomments
Graduating College With NMOI am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A...reactions4comments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I...reactions4comments
Feeling Bad About My NMO DiagnosisThis video is about how I've been feeling recently and another side of how I cope with NMO. Life isn't always about...reactions4comments
Parenting with NMOSDThe hardest situation to deal with is a chronic disease like neuromyelitis optica spectrum disorder (NMOSD) that continues to debilitate you, to...reactions2comments
NMO in Children and AdolescentsNeuromyelitis optica spectrum disorder (NMO) is a disease that affects the central nervous system. NMO breaks down a protective coating around neurons...reactionscomments
Going to School with NMONeuromyelitis optica spectrum disorder (NMO) is an autoimmune condition and can impact many parts of life - including going to school. Unfortunately...reactions1comment
Disability BenefitsWhen you have a long-term (chronic) medical condition like NMO, there may be times when you are not able to work. This...reactionscomments
Telling My NMO Story Can Be PainfulThere was a point in my health journey when it’s just bothersome to constantly get questions about my neuromyelitis optica (NMO) diagnosis...reactionscomments
Coping With Brain Fog and Fatigue"I just read that last chapter, why can’t I remember what happened?" "I’ve never missed a deadline and I just forgot a...reactionscomments
Filter Out the NegativeThere is a saying about tough times: you get to see the true colors of everyone around you. I had seen tough...reactionscomments
The Physical and Emotional Toll of SteroidsMy last neuromyelitis optica (NMO) attack was roughly eight years ago. It was my most terrifying attack yet. At that point my...reactionscomments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three...reactions1comment
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do...reactionscomments
Feeling Discouraged with Physical Therapy ProgressThrough my journey with neuromyelitis optica (NMO), there have been highs and lows. For me it has been 10 years since I...reactionscomments
My Rituxan ExperienceI want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle...reactionscomments
NMOSD Made Me Say Goodbye to High HeelsEvery time I’m asked at a physical therapy consult, “What’s your goal?” my answer is almost always to walk - in high...reactionscomments
I Miss the Joy of RunningBefore neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I...reactions1comment
Understanding NMOSD LesionsNeuromyelitis optica spectrum disorder (NMOSD) affects the central nervous system. The brain, spinal cord, and the optic nerve are some of the...reactionscomments
I’m Disabled, Not Deceased!I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm...reactions2comments