Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three...reactions1comment
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do...reactionscomments
Feeling Discouraged with Physical Therapy ProgressThrough my journey with neuromyelitis optica (NMO), there have been highs and lows. For me it has been 10 years since I...reactionscomments
My Rituxan ExperienceI want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle...reactionscomments
NMOSD Made Me Say Goodbye to High HeelsEvery time I’m asked at a physical therapy consult, “What’s your goal?” my answer is almost always to walk - in high...reactionscomments
I Miss the Joy of RunningBefore neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I...reactions1comment
Is It An NMO Relapse? New SymptomsA few months ago, I decided to go off my nerve painkillers because I was getting recurrent urinary tract infections (UTIs) and...reactionscomments
Understanding NMOSD LesionsNeuromyelitis optica spectrum disorder (NMOSD) affects the central nervous system. The brain, spinal cord, and the optic nerve are some of the...reactionscomments
I’m Disabled, Not Deceased!I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm...reactions2comments
Let's Talk AbleismIt's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but...reactionscomments
NMO, Social Media, and my Mental HealthIt was pre-pandemic when I decided to start sharing my NMO story on social media. I started sharing my story online because...reactions4comments
Understanding the Impact of NMO: Misdiagnosis, Mental Health, and CommunityWe collected information about the experiences of 61 people living with NMO in the 1st Annual NMO In America survey. NMO is...reactions1comment
NMO Symptoms: PainPain is an unfortunate part of living with neuromyelitis optica spectrum disorder (NMO). It can impact your quality of life, both physically...reactions3comments
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain...reactionscomments
Let's Have a Drink!I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or...reactionscomments
Ways I Reduce StressAs time has passed, I have picked on certain things that trigger my body into an NMO flare. My biggest trigger at...reactions2comments
Scrambler TherapyMore than 80 percent of people with neuromyelitis optica spectrum disorder (NMO) experience significant pain. This may be pain related directly to...reactions1comment
I Feel Alone with a Rare DiseaseLiving with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first...reactionscomments
Prioritizing My HealthBeing back in New York is almost like a gift. It just feels so right. But also being back means I need...reactionscomments
Record Your JourneyI record everything. Since the day I was diagnosed with neuromyelitis optica (NMO), I have always felt the need to record and...reactionscomments
