Stories

I started losing my vision in my right eye went to options sent me to hospital n had blood test done. Next day came back with aquapurina-4 positive with NMO...

I was just diagnosed with NMSOD a year ago. It took 3 years going from hospital to hospital and numerous tests - still going on to check if the treatment...

Last year July 2023 I started vomiting uncontrollably. I wasn't able to keep anything down, even drinking smoothies or shakes proved to be difficult. I eventually visited a local doctor's...

I have deliberated quite a few times on whether to share my story mainly because it's been a hell of a journey. It quite a difficult one to tell without...

I have deliberated quite a few times on whether to share my story mainly because it's been a hell of a journey. It quite a difficult one to tell without...

So.. Hi! My name's Kate and i have NMO since possibly 3 years old . My story starts dynamically at one of my basketball matches. A girl pulled my arm...

I woke up and couldn’t see out of my right eye. I called and got in with my Eye Dr. he said my optic nerve was swollen and I had...

Frustrated, helpless, lonely. Optic Neuritis symptoms, lots of pain with eye movements, color change. All symptoms of optic Neuritis yet clear MRI? 3 positive aqp4 blood tests and disability symptoms...

It's 2019, and I have a toothache. No big deal -- I'll go to the dentist. I make an appointment, and that tooth is infected and has to be removed...

I grew up in Rome, but at the age of 9, after my father's death, my family and I moved to Pisa. As an adult, I returned to Rome where...

Before 12/2002 I was very active and enjoyed my job. I'd travel on business on my own. Able to cook dinners, like to go shopping on my own, and just...

Around October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it went away after 7 days, and life seemed...

Hello, my name is Tia Brooks I’m 50 years old, I was diagnosed with NMO October 2009. I guess my stubbornness and need to pay bills I ignored all the...

I was told I have NMO but no clinical diagnosis yet. It started with pain in my left eye and blurred vision I went to see an optometrist and she...

First, I had problems with my right arm. I thought I had injured my shoulder worse from a little accident two months before. Then it became problems with my sensitivity...

2 years ago I had an attack of never-ending nausea, vomiting, acid reflux, and hiccups. Doctors could not figure out what was triggering this and why it wouldn’t go away...

Hello everyone! My life changed in July 2019. I woke up one morning with blurry vision. I looked at my TV screen and immediately thought that the TV was about...

Hi. In 2019 I got diagnosed with transverse myelitis. My legs were not moving at all. I went to the er they drain 2 1/2 liters of fluid out of...

Pain in and pain out, And then there was a final blackout. Open my eyes to ICU. Doctors in and doctors out, I am in haze. Drugs in and tears...

On 9/11/2021 I was admitted to ICU with 95% of my body going numb waist down. My initial diagnosis was Transverse Myelitis and within 4 days I was to be...