Living with NMOI am 65 years old and have now been living with this disease only 2 years but seems much longer. Before this came into my life I was active going...reactions2comments
16 years misdiagnosed with MSHello, I'm Brittany! I was first diagnosed with Relapsing Remitting Multiple Sclerosis when I was 15 and have been dealing with the trials and tribulations that come along with it...reactions6comments
Andy caseyI started losing my vision in my right eye went to options sent me to hospital n had blood test done. Next day came back with aquapurina-4 positive with NMO...reactions1comment
Only the lonely - my journeyI was just diagnosed with NMSOD a year ago. It took 3 years going from hospital to hospital and numerous tests - still going on to check if the treatment...reactions1comment
Recent NMO diagnosisLast year July 2023 I started vomiting uncontrollably. I wasn't able to keep anything down, even drinking smoothies or shakes proved to be difficult. I eventually visited a local doctor's...reactions1comment
My diagnosis and journeyI have deliberated quite a few times on whether to share my story mainly because it's been a hell of a journey. It quite a difficult one to tell without...reactions3comments
My journey and storyI have deliberated quite a few times on whether to share my story mainly because it's been a hell of a journey. It quite a difficult one to tell without...reactionscomments
The Call-me-murphy storySo.. Hi! My name's Kate and i have NMO since possibly 3 years old . My story starts dynamically at one of my basketball matches. A girl pulled my arm...reactions3comments
Friday, March 29I woke up and couldn’t see out of my right eye. I called and got in with my Eye Dr. he said my optic nerve was swollen and I had...reactions1comment
Frustrating experience with diagnosisFrustrated, helpless, lonely. Optic Neuritis symptoms, lots of pain with eye movements, color change. All symptoms of optic Neuritis yet clear MRI? 3 positive aqp4 blood tests and disability symptoms...reactions3comments
Toothache to blindnessIt's 2019, and I have a toothache. No big deal -- I'll go to the dentist. I make an appointment, and that tooth is infected and has to be removed...reactions1comment
I am Elisabetta, and I am not my illnessI grew up in Rome, but at the age of 9, after my father's death, my family and I moved to Pisa. As an adult, I returned to Rome where...reactionscomments
From independent to dependentBefore 12/2002 I was very active and enjoyed my job. I'd travel on business on my own. Able to cook dinners, like to go shopping on my own, and just...reactionscomments
My journey with NMOAround October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it went away after 7 days, and life seemed...reactions4comments
The Unpredictable Life of Tia BrooksHello, my name is Tia Brooks I’m 50 years old, I was diagnosed with NMO October 2009. I guess my stubbornness and need to pay bills I ignored all the...reactions5comments
My Story So FarI was told I have NMO but no clinical diagnosis yet. It started with pain in my left eye and blurred vision I went to see an optometrist and she...reactions1comment
Nearly 2 Years Diagnosed with NMOFirst, I had problems with my right arm. I thought I had injured my shoulder worse from a little accident two months before. Then it became problems with my sensitivity...reactions1comment
A New Start2 years ago I had an attack of never-ending nausea, vomiting, acid reflux, and hiccups. Doctors could not figure out what was triggering this and why it wouldn’t go away...reactions3comments
NMOSDHello everyone! My life changed in July 2019. I woke up one morning with blurry vision. I looked at my TV screen and immediately thought that the TV was about...reactions1comment
LifeHi. In 2019 I got diagnosed with transverse myelitis. My legs were not moving at all. I went to the er they drain 2 1/2 liters of fluid out of...reactions2comments
