Stories

Around October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it went away after 7 days, and life seemed...

Hello, my name is Tia Brooks I’m 50 years old, I was diagnosed with NMO October 2009. I guess my stubbornness and need to pay bills I ignored all the...

I was told I have NMO but no clinical diagnosis yet. It started with pain in my left eye and blurred vision I went to see an optometrist and she...

First, I had problems with my right arm. I thought I had injured my shoulder worse from a little accident two months before. Then it became problems with my sensitivity...

2 years ago I had an attack of never-ending nausea, vomiting, acid reflux, and hiccups. Doctors could not figure out what was triggering this and why it wouldn’t go away...

Hello everyone! My life changed in July 2019. I woke up one morning with blurry vision. I looked at my TV screen and immediately thought that the TV was about...

Hi. In 2019 I got diagnosed with transverse myelitis. My legs were not moving at all. I went to the er they drain 2 1/2 liters of fluid out of...

Pain in and pain out, And then there was a final blackout. Open my eyes to ICU. Doctors in and doctors out, I am in haze. Drugs in and tears...

On 9/11/2021 I was admitted to ICU with 95% of my body going numb waist down. My initial diagnosis was Transverse Myelitis and within 4 days I was to be...

I am currently 21 and as of right now I have had knowledge of my disease for two years. Doctors believe I’ve had it for over 10 years but never...

I began to have really weird symptoms a couple years back. At first, I had a rash that was generalized that eventually ended up with most of the skin on...

Hello, I was diagnosed in 2016 and I'm from Slovenia 🇸🇮. It noticed my right hand was numb I began to have tingling all over my body and then the...

I woke up July 14 of 2020 and thought I was just tired legs were very weak went on like this until July 18 started experiencing numbness, and tingling, pins...

Hi, I have NMOSD. Am 56 and live near Toronto, Ontario in Canada. I was diagnosed with MS in 1979 at age 14. That was revised to NMOSD in 2018...

It's March 2020, my friend wins a trip to Mexico. Her husband can’t go, so I’m next in line! We get off the plane in Mexico to multiple texts telling...

My story starts back in July of 2018. I was working at the local hospital as a Patient Advocate (loved my job). I started with a “pulled muscle” type of...

At Neuromyelitis-Optica.net, we believe that we are stronger together than we are alone. Living with or caring for someone with neuromyelitis optica spectrum disorder can be a challenge, but the...