Accessibility and NMOSD
For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey? What has helped to make this part of your journey more tolerant?
you are right, the struggle is real and challenging. I have optic neuritis too. So I am partially blind and squint too. I couldn't walk properly as I was recovering from paralysis. I had my daughter and her friends who encouraged me to walk more. Initially, I used to feel very frustrated because people mock laugh pass remarks about the way I walked and my squinted eyes. But then I said what the hell why should I get bothered? So I stopped getting bothered. I started focusing my recovery . NMO has transformed me in a very positive way. I have filtered the negative out. I have become tolerant in a way that I have stopped caring about unnecessary drama and have embraced myself and my illness most beautifully. Warmly Noor(Patient Leader) God Bless you, people can be cruel. I to walk funny, but I don't care what people think. I only have told some of my family and a three close friends about my condition. It was easier for me, due to the fact that I retired with no physical change in me. So I didn't see people on a daily basis. I live in the middle of no where in SW Iowa, so very lucky not to see people. When and if they ask, I just say I have back problems, which isn't a lie😀 Thank u for the reply.❤️ I live in one of the most crowded city in the world. N I totally agree with u, when u mentioned; "very lucky not to see people ". I go fo4 my occasional getaway and it's a bliss. No explanation nothing doing. And I love the fact that each one of us are fighting back in our new normal. Sending love ❤️
I too
