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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 5 days ago

Finding meaning and adjusting to life with NMOSD

NMOSD changes everything. Many people go from living full, active lives, to being limited. How have you adjusted? What are some new hobbies or activities that you've engaged in to...

Anyone from the UK here?

Hi there. I'm wondering if anyone here is from/living in the UK. I couldn't find a forum or website like this in tbe UK so here I am. But life...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

Tips for showering

Does anyone have tips for making showering less difficult and more enjoyable?...

Featured

Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...

Accommodations in the workplace

Hello, I have had NMO for the last three years. I am a Special Education (mild/moderate) Teacher and have been teaching for 21 years. Within the last 2 years, work...

What is something you did for yourself today?

What is something you did for yourself today that made you feel good, either both physically or mentally or one or another to take your mind off having NMO and...

Uhthoff coping

Does anyone have/had Uhthoff syndrome and if so ? What helps you deal with...

Mental Health

Hi Fam! What are some struggles you have with your mental health and how do you cope? Personally I’ve been struggling with depression, and something that helps me get out...

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey? What has helped to make this part of...

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