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Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack started after taking an afternoon nap. I woke up and tried to get up from my couch where I was napping and Bam I fell to the floor and banged my head on my coffee table. I lost consciousness and when I woke up I had blurred vision and could not feel from the chest down. I was lucky enough that when I went to the ER there was a Neurologist who happened to be there and he ran tests to confirm that I was suffering from NMOSD. I went through a 2 month therapy in which I did not do well. I ended up with having to have a colostomy and an indwelling catheter as I lost total control of my sphincter muscle and all bladder control, along with the ability to walk. I have been pretty much bedridden since then. This was in 1995 and I haven't had another attack since. I also was one of the first people to start using Solaris when it first hit the market as the first FDA drug to be approved to treat NMO.

  1. Hi there

    I was diagnosed almost 15 years ago, I had 2 attacks in one year.

    I’m currently on Enspryng.
    Are you still
    On Solaris and how are you doing on it currently?

    Look forward to hearing back from you !

    -Sandra (moderator @Neuromyletis-optica.net)

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