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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Have you had a spinal tap?

Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...

How is everyone doing???

Hi everyone!!! How is everyone doing?? personally, I have been struggling both mentally and physically. I hope everyone is doing well! I am hosting a zoom tomorrow night at 7:30...

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How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

Advice for someone who is newly diagnosed with NMO

What do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

Neuro Optica

Been diagnosed with: Optic Neurits, torturous version n left eye& somethings wrapped bg with your left eye.All by Optlamoligists. Now I’ve just been told that I don’t have any of...

Need help. I am new to this community

NMO has been there with me for years now. I’ve coped up with this condition and trying to lead a normal life. But sometimes i feel so alone as no...

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