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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

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How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third party functional med lab (Vibrant). It detected moderate...

It's Giveaway Time!

We've got you covered this winter! Enter to win a heated blanket! Get more details about the giveaway here.

Have you had a spinal tap?

Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...

How is everyone doing???

Hi everyone!!! How is everyone doing?? personally, I have been struggling both mentally and physically. I hope everyone is doing well! I am hosting a zoom tomorrow night at 7:30...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

Advice for someone who is newly diagnosed with NMO

What do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...

Neuro Optica

Been diagnosed with: Optic Neurits, torturous version n left eye& somethings wrapped bg with your left eye.All by Optlamoligists. Now I’ve just been told that I don’t have any of...

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