My story of NMO
I am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022.
I am 43years old, I live in Cameroon.
i started experiencing some pain on my right arm, this progressed to paresis of the right arm and I couldn't write. I consulted a neurologist who diagnosed NMO after a series of tests. I took high doses of steroids and continued my with imurel. Tonic spasms set in, and the neurologist added lioresal.
Two months after, the paresis progressed to the right leg, I again took high doses of steroids and Rituximab and intensive physiotherapy.
At the moment I am limping, still taking imurel and Lioresal. The spasms keep coming up from time to time.
Hi! I'm so glad you found us! I know its challenging to find people in the NMOSD community. We have awesome advocates around Cameroon of you are interested in connecting!
Helloo Avery, thank you for the reaction. I will be glad to connect with the advocates in Cameroon.
Hellooo everyone in the house.
Please is there a link between NMO and insomnia?Hi @Lukong! NMO can definitely impact sleep. Other community members may jump in with their personal experiences with NMO and insomnia. In the meantime, you may find this article on NMO and sleep disorders helpful: https://neuromyelitis-optica.net/sleep. Best, Alexis (team member).
Thank you so much Alexis
