Celebrating Holidays with NMOThis time of year, when everything is joyful and jolly, it seems like NMO always has an unpleasant surprise for me. The...reactions1comment
My Experiences with Problematic DoctorsIt has been over two years that I've lived since finding out I have NMO. I've endured my fair share of experiences...reactions2comments
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after...reactionscomments
Traveling with a Chronic ConditionI used to absolutely love traveling, especially before I was diagnosed. It wasn’t as exhausting as it is now, having a chronic...reactions3comments
Relationships and Building Back My ConfidenceBefore life with NMO, I was an outgoing people person. I had many friends all around and a serious relationship. As time...reactions1comment
My Life Is Finally Falling Into PlaceLast year, it felt like my life was falling apart, and nothing would feel the same ever again. When I found out...reactions8comments
What Is the Social Health Network Community?Like our other Health Union condition communities, the Social Health Network brings people together to drive unique and impactful conversations about health...reactionscomments
AQP4 Negative and NMO IgG is FrustratingBeing an AQP4-negative NMO IgG patient can be so frustrating. I feel like an orphan patient with limited access to treatments because...reactionscomments
A Kidney Infection After COVIDI was sent home the same day. I was relieved as I hate staying in hospitals. I was told by an NMO...reactionscomments
Life On PrednisolonePrednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for...reactionscomments
Three Legal Documents Caregivers NeedAs a caregiver, you may be in charge of a partner, parent, or grandparent who lives with NMO. Some may experience drastic...reactionscomments
Disclosing Your DiseaseAs rare disease patients, we have to become comfortable with explaining NMOSD. A lot of times, we are the ones telling the...reactionscomments
What It Means To Me To Be An AdvocateIn this video, I'm sharing what it means to me to be an advocate for NMOSD. ...reactions2comments
NMO Life Hacks Part 2: ShoweringIn this video, I share my second video in a 2-part series on NMO life hacks about showering. Let me know what...reactionscomments
Pain Medications: A Process Of Trial And ErrorThe first pain medication I took for my nerve pain, even before my diagnosis, was Duloxetine. It helped calm down the burning...reactionscomments
The Emotional Rollercoaster of NMOHere we go again. The buildup of emotions is eating me alive. Perhaps it's the season for it, I don't know. What I...reactions3comments
Losing my YouthGrowing up an athlete, I was always the active one of the bunch. Always wanting to go, go, go, and still having...reactions4comments
Life After My NMO DiagnosisSince being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I...reactionscomments
My Journey With NMO: Taking Back My LifeThis will be the final part of this journey so far. A new treatment, fresh starts, a new purpose, and a glimmer...reactionscomments
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times...reactions2comments
