Asks the Advocates: NMO and the Next 10 YearsHere's what they had to say: "There are so many things about NMO that I hope change in the next 10 years...reactionscomments
Rare In America: What's That?The "In America survey" is now closed. Medical gaslighting, misdiagnosis, and finding solid and close-knit communities. These are some experiences you, the...reactionscomments
My Journey with NMO Part 2: Journey Into FearFear can be your worst enemy and can destroy everything around you. It can make you choose some choices that aren't in...reactionscomments
Bad Experiences with Medical CareBeing a person of color in the United States, particularly a black woman, I'm very familiar with being treated differently. It's unfortunate, but...reactions3comments
My New "Normal" with NMOSDI'm moving into the second year of my NMO diagnosis. It may seem like it was a long time ago to everyone...reactions1comment
Assembling Your Best Healthcare TeamOne of the first steps in managing your NMO is assembling the best healthcare team for you. Having the support of friends...reactionscomments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab...reactionscomments
Ask the Advocates: How Do You Explain NMO?We asked our advocates how they explain what NMO is to the people in their lives. Here's what they had to say:...reactionscomments
Talking About NMOSD: An Elephant In The HouseThroughout this process of living with NMOSD, mental health has been like the silent elephant in the house for my family. As...reactionscomments
Ask the Advocates: What Does Community Mean to You?We asked our advocates what having an online NMO community means to them. Here's what they had to say; "I cannot stress...reactionscomments
Dealing with Loss after NMOThere are a ton of things that I was attached to before I had an NMO attack. I was a person who...reactionscomments
Social Media and Chronic IllnessI'm an 80s baby. You know, the era of cool kids? Kidding. I remember when my dad came home with clunky equipment...reactionscomments
Let's Talk NMO Attacks and Hospitalizations Part 3"When I go to the hospital I have to keep in mind that NMO although is becoming more recognized, it is still...reactions1comment
Want to share your NMO story? Start here!"I want to share my story but I don't know... I don't even know where to start." If this sounds like you...reactionscomments
Frequently Asked Questions (FAQs) About NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease of the central nervous system (eye nerves, spinal cord, and brain). It...reactionscomments
Do Factors Like Race and Age of Onset Predict Long-Term NMO Effects in Kids?Experts have been working hard to learn more about the progression of neuromyelitis optica spectrum disorder (NMOSD or NMO). In adults, some...reactionscomments
My Honest Letter to NMODear NMO, I’m wondering why I was chosen to be a victim of such a horrific disease. I know I’m a strong...reactionscomments
My History with NMO so Far Part 1Everyone's NMO journey can be extremely different or be very similar. From what I've seen since joining this amazing site is that...reactionscomments
The Holiday Blues: Living With a Chronic Illness Like NMOWe've gotten past Thanksgiving and Christmas is just right around the corner. This is a time to gather with family and friends...reactionscomments
Let's Talk NMO Attacks and Hospitalizations Part 2We asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due...reactionscomments
