My New "Normal" with NMOSDI'm moving into the second year of my NMO diagnosis. It may seem like it was a long time ago to everyone around me. I, on the other hand, feel...Reactions0reactionsComments1 comments
Assembling Your Best Healthcare TeamOne of the first steps in managing your NMO is assembling the best healthcare team for you. Having the support of friends, family, and significant others can be beneficial in...Reactions0reactionsComments0 comments
FDA Approves Drug for Pre-Exposure Prevention of COVID-19The U.S. Food and Drug Administration (FDA) has authorized a new drug that may help prevent COVID-19. It is called Evusheld (tixagevimab co-packaged with cilgavimab).1-3 Evusheld is not authorized for...Reactions0reactionsComments0 comments
Ask the Advocates: How Do You Explain NMO?We asked our advocates how they explain what NMO is to the people in their lives. Here's what they had to say: "When I was first diagnosed, I had a...Reactions0reactionsComments0 comments
There is an Elephant in the HouseThroughout this process of living with NMO, mental health has been like the silent elephant in the house for my family. As a mother of two young boys, a wife...Reactions0reactionsComments0 comments
Ask the Advocates: What Does Community Mean to You?We asked our advocates what having an online NMO community means to them. Here's what they had to say; "I cannot stress the importance of having an online community for...Reactions0reactionsComments0 comments
Dealing with Loss after NMOThere are a ton of things that I was attached to before I had an NMO attack. I was a person who would dress up, wear heels, and strut my...Reactions0reactionsComments0 comments
Social Media and Chronic IllnessI'm an 80s baby. You know, the era of cool kids? Kidding. I remember when my dad came home with clunky equipment one day. As soon as I saw it...Reactions0reactionsComments0 comments
Let's Talk NMO Attacks and Hospitalizations Part 3"When I go to the hospital I have to keep in mind that NMO although is becoming more recognized, it is still rare and not everyone, including doctors, are aware...Reactions0reactionsComments1 comments
Want to share your NMO story? Start here!"I want to share my story but I don't know... I don't even know where to start." If this sounds like you, you're not alone. I've heard had many conversations...Reactions0reactionsComments0 comments
Frequently Asked Questions (FAQs) About NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease of the central nervous system (eye nerves, spinal cord, and brain). It is sometimes also called neuromyelitis optica or NMO...Reactions0reactionsComments0 comments
Do Factors Like Race and Age of Onset Predict Long-Term NMO Effects in Kids?Experts have been working hard to learn more about the progression of neuromyelitis optica spectrum disorder (NMOSD or NMO). In adults, some research has suggested that the age of the...Reactions0reactionsComments0 comments
My Honest Letter to NMODear NMO, I’m wondering why I was chosen to be a victim of such a horrific disease. I know I’m a strong person, both mentally and physically. But I’m tired...Reactions0reactionsComments0 comments
My History with NMO so Far Part 1Everyone's NMO journey can be extremely different or be very similar. From what I've seen since joining this amazing site is that my case is different. I feel that so...Reactions0reactionsComments0 comments
The NMO Learning CurveThere is a seemingly never-ending learning curve that goes hand in hand with an NMO diagnosis. One of the most difficult aspects of living with NMO has been the process...Reactions0reactionsComments0 comments
The Holiday Blues: Living With a Chronic Illness Like NMOWe've gotten past Thanksgiving and Christmas is just right around the corner. This is a time to gather with family and friends, enjoy the moment, and embrace the fun times...Reactions0reactionsComments0 comments
Let's Talk NMO Attacks and Hospitalizations Part 2We asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due to NMO attacks, also known as relapses. This...Reactions0reactionsComments0 comments
Are Certain Types of Cancer Related to NMO?In many cases, neuromyelitis optica spectrum disorder (NMOSD or NMO) occurs alongside other health issues. For example, someone with NMO may also have another autoimmune condition. This is a condition...Reactions0reactionsComments0 comments
My NMO Journey and Why I'm ThankfulWhy am I here? What is my purpose? Why me? Why THIS disease? What did I do wrong? What can I possibly offer this world to still be here? Why?...Reactions0reactionsComments1 comments
Let's Talk NMO Attacks and HospitalizationsWe asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due to NMO attacks, also known as relapses. This...Reactions0reactionsComments0 comments
