My Journey With NMO: Taking Back My LifeThis will be the final part of this journey so far. A new treatment, fresh starts, a new purpose, and a glimmer...reactionscomments
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times...reactions2comments
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think...reactionscomments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more...reactions9comments
We Asked Mo 23 QuestionsAs we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to...reactions2comments
What's in Mo's BagYou never know what you might need to have on you to make life with NMO all the easier. Mobility devices? Incontinence...reactionscomments
My Daughter's Diagnosis Prepared Me for MineBeing diagnosed with NMO has been quite the journey for me. It took 3 years after I initially began getting sick to...reactions5comments
Let’s Talk Doctors and Advocating for YourselfHow many times have you gone to the doctor with a complaint, only to be told there is nothing wrong? I’m sure...reactionscomments
What's in Avery's Bag?You never know what you might need to have on you to make life with NMO all the easier. Let's take a...reactionscomments
Special Assistance When Traveling“The Air Carrier Access Act (ACAA) is a law that makes it illegal for airlines to discriminate against passengers because of their...reactions2comments
Ask the Advocates: Coping with PainWe asked our advocates how they cope with the pain that comes from living with NMO. We also asked what tips or...reactions1comment
My First Trip After My NMO AttackI'd spent 7 months recovering from my first attack. It’s been two months since I've been off steroids and I had finally...reactions4comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there...reactionscomments
We Asked Aldelly 23 Questions: Introducing Our New Video SeriesAs we know, NMO is an exceedingly rare disease. When you meet someone who also lives with NMO, it's only natural to...reactionscomments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe...reactionscomments
Post-Surgery: Bye-Bye Spasms?Editor's note: In a previous article, Aldelly discussed having surgery to install a baclofen pump to help treat spasms. To read that...reactionscomments
Post-Infusion Nerve Pain and Back on SteroidsI had my first infusion in January. I was so happy to start a preventative treatment so I could finally get off...reactions9comments
Take the Health and Media Habits Survey!The Media Habits Survey is now closed. Thank you for your interest! Managing a chronic condition is not easy and can be...reactionscomments
Ask the Advocates: How Do You Explain NMO?We asked our advocates how they explain what NMO is to the people in their lives. Here's what they had to say:...reactionscomments
