Spasm HorrorsAfter being diagnosed as AQP4+ and getting paralyzed from the waist down, my initial phase of spasms started without any pain. My...reactions2comments
Feeling Stuck Since My DiagnosisI feel stuck since my neuromyelitis optica (NMO) diagnosis. My life has been nothing but a whirlwind of constant change, lack of...reactionscomments
Finding Light In The NMOSD DarknessWhen NMOSD entered my life, two things hit me hard. The first was the lack of information, and the second was isolation. The...reactionscomments
What I Learned From My Recent RelapseMy official journey with NMOSD began in November 2021 when I was told I am AQP4+. Over 3 years, I dealt with...reactionscomments
Abnormal Sensations With NMOSDPeople with neuromyelitis optica spectrum disorder (NMOSD or NMO) are forced to navigate a variety of challenging symptoms: vision loss, headaches, weakness...reactionscomments
You Don't Look SickI was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one...reactions3comments
My Neurogenic BladderOne of my very first symptoms before getting diagnosed with NMO was having problems with my bladder. After experiencing many embarrassing moments...reactions4comments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class...reactions2comments
How Being A Carer With NMO Changed MeMy mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO...reactionscomments
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could...reactions1comment
Is NMO Causing My Thyroid Issues?Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal...reactionscomments
Support One Another: Relationships With NMOSDLiving with neuromyelitis optica spectrum disorder (NMOSD) comes with challenges, both physical and emotional. One major challenge of living with a rare...reactionscomments
Taking Back My VoiceI worked so hard last year coming to terms with my bad eye, and trying to make the best out of life...reactionscomments
Navigation and Accessibility: NMOSD ObstaclesNMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they...reactions3comments
Join the Conversation: Physical Therapy for NMOSDPeople with neuromyelitis optica spectrum disorder (NMOSD) often experience a loss of mobility. For some, physical therapy can help them regain mobility...reactions1comment
Mastering Stress: A Personal Journey to Mental and Physical WellnessI've learned during my journey with NMO that stress can cause a lot of negative reactions in my body. This can have...reactionscomments
Working Out with NMOSDOver the last two years, I’ve started to go to the gym again, and weight lift under the supervision of my doctors...reactionscomments
Pins and NeedlesIt was 3 months after I was diagnosed with neuromyelitis optica spectrum disorder (NMOSD). I was 95 percent paralyzed from the waist...reactions3comments
Blossom's Magic: How My Cat Helped Me Conquer DepressionMany in the NMO community can relate to the feeling of not being understood by others around you. I isolated myself from...reactionscomments
NMOSD Helped Me Come OutBeing diagnosed with a rare disease, NMOSD, helped me come out. It’s June so that means it’s pride month, and during pride...reactionscomments
