Driving With NMODriving, for me, is an essential part of life–especially where I live. It’s how I transport my kids to and from school, activities, my medical appointments, work and more. I...Reactions0reactionsComments0 comments
What Does Self-Advocacy Mean?You constantly hear the phrase that you need to advocate for yourself with doctors and in appointments you hear how you need to stand up for yourself. And, if you...Reactions0reactionsComments0 comments
Worsening Vision Confirmed By Eye TestsIt had been a little over a year since my last visit and I was excited for new contacts. My eyes have been a little off but I figured I...Reactions0reactionsComments0 comments
My NMO Travel Blog ExperienceI was working in management for a charity organization in 2014 when I had my first Neuromyelitis Optica attack. I haven’t been able to work conventionally since. That's due to...Reactions0reactionsComments0 comments
I Have Mental Health Issues and It Is OKBy definition, mental health is taking care of psychological, emotional, and social well-being but for me (mine slightly injured mental health) was an inseparable friend that I’ve had for a...Reactions0reactionsComments0 comments
NMO in Children and AdolescentsNeuromyelitis optica spectrum disorder (NMO) is a disease that affects the central nervous system. NMO breaks down a protective coating around neurons that helps them transmit signals, called myelin. NMO...Reactions0reactionsComments0 comments
Adapting My Home Fabulously For NMOOver the triumphs and tribulations of dealing with NMO, I’ve had to adapt my home. Thankfully, I have a handy husband who love home projects (said no husband ever) and...Reactions0reactionsComments1 comments
My NMO Relapses Are Slow BurnersMy first neuromyelitis-optica attack seemed to happen rapidly and dramatically. Although I had known something was wrong for months, it was only 48 hours from realizing I couldn’t pee to...Reactions0reactionsComments0 comments
Visiting Pakistan For The First Time After My DiagnosisI was born in Scotland, but my mother is from Pakistan, so I have a lot of family there including my grandmother. I haven’t been out of the United Kingdom...Reactions0reactionsComments0 comments
Going Out With FriendsAt just 19, I was diagnosed with NMO, which as I’m sure many of us know are the prime party years. These are the years where you go to college...Reactions0reactionsComments0 comments
My NMO Diagnosis StoryI knew something was wrong for a couple of months. I kept making appointments with my doctor to discuss new symptoms that were appearing daily. First, it was searing hot...Reactions0reactionsComments1 comments
Public Speaking Gave Me PurposePublic speaking is one of the most feared things in the human race. We are so fearful of the judgment of other people that speaking to large groups of people...Reactions0reactionsComments0 comments
5 Tips For Self-Advocating At The Doctor’s OfficeI've learned a few things about self-advocacy since the beginning of my journey with frequent doctor’s visits. It can be intimidating to ask questions during your medical appointments because you...Reactions0reactionsComments0 comments
Social Media Gave Me a VoiceBeing diagnosed at 19, I didn’t have much of a voice. Let’s be honest–I was still coming into adulthood, figuring out who I was, and my place in this world...Reactions0reactionsComments0 comments
An Emotional Travel Experience Going HomeWell my trip to visit my mother is winding down and it’s been quite a trip. My emotions have been on red alert and life took me down hard. From...Reactions0reactionsComments3 comments
MourningI scroll through this website every day, seeing pain in different types and forms. People will talk about life before their NMO took over. Something that we don't talk enough...Reactions0reactionsComments2 comments
What Is It Like Supporting Someone With NMO? I Interview My Caregiver!My wife is also my caregiver. It’s a fine balancing act between our romantic relationship and the practical support I need due to my Neuromyelitis Optica (NMO). We’d only been...Reactions0reactionsComments1 comments
The Beauty of Stretch MarksFor my whole life, I have been an athlete. I have always been active and tried my best to stay in shape. I also never really paid attention to a...Reactions0reactionsComments0 comments
The Great Big World and How I Navigate ItAfter my last eye attack from NMO and because of my vision loss, I made an oath to myself that I wanted to see the world before I lost more...Reactions0reactionsComments2 comments
Steroids Saved My Life but Damaged My JointsI turned 39 on February 8th, 2023. I celebrated my birthday in the hospital, recovering from my 2nd hip replacement. In 2012, I first got sick from, unbeknownst to me...Reactions0reactionsComments3 comments