Warning SignsGetting to know your body is very important when living with a chronic illness like NMOSD (neuromyelitis optica spectrum disorder). With the...reactionscomments
Stop Telling Me “You’re So Strong”You’re so strong. I don’t know how you do it. You’re so young to be dealing with this. You’re too young to...reactions1comment
A 13 Hour Flight After Rituximab InjectionI haven’t been abroad for 7 years. I didn’t go anywhere for the last two years because of my NMO (neuromyelitis optica)...reactions2comments
Neuromyelitis Optica Spectrum Disorder (NMOSD) in ChildrenNeuromyelitis optica spectrum disorder (NMOSD or NMO) is a rare disorder affecting the nervous system. About 4 percent of all NMOSD cases...reactionscomments
Vacationing In A WheelchairIt was 10 years in September since I became paralyzed due to an NMOSD (neuromyelitis optica spectrum disorder) flare up. I finally...reactionscomments
Vision Changes and My Mental HealthWell, I made it. It was a long stressful summer of illness all around. From depression to a car of screaming cats...reactions1comment
Language BarrierNavigating the healthcare system is hard enough for a regular English-speaking person. But imagine being diagnosed with a rare condition like NMOSD...reactionscomments
Finding Balance: Navigating Toxic Positivity and Neuromyelitis OpticaLife is a beautiful journey filled with ups and downs. It's natural for us to experience a wide range of emotions as...reactionscomments
Chronic FatigueThe joys of chronic fatigue, the battle that even caffeine can’t win. When I was first diagnosed I would sleep 16 to...reactions2comments
Letting Go of PerfectionismHow does one let go of the idea of perfectionism? With today's world and so much social media, how is it not...reactionscomments
Hi! I Have NMO. Wanna Go On A Date?Love is something most people want. It’s warm, it’s safe, it’s comfort, and it can be unique. It can be a million...reactionscomments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for...reactionscomments
Handicap Accessible MinivanOnce I passed my drivers license test to drive with hand controls, I was super excited to start shopping for a vehicle...reactionscomments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis...reactionscomments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three...reactions1comment
NMO Warriors Inspire My Daughter and MeMy daughter and I are truly indebted to this website, and to our community family members, the warriors and there are heartfelt...reactionscomments
The Exhaustion of An Invisible IllnessLiving with neuromyelitis optica (NMO) for the last 15 years has definitely had its challenges, however, trying to explain how I feel...reactionscomments
Being Okay With Saying NoI've learned to protect my peace by doing what’s best for me despite how someone else may feel, and not feel bad...reactionscomments
NMO Stigma: "She’s Faking Her Illness For Attention"Recently, I found out from one of my friends that someone from my school had said that I was faking my illness...reactions3comments
Being Present with Neuromyelitis OpticaSince my Neuromyelitis Optica (NMO) diagnosis in 2014, I find it hard to strike the right balance between enjoying a bit of...reactionscomments
