Shining a Light on Your NMOSD ExperienceWe want to learn more about our community members living with neuromyelitis optica spectrum disorder (NMOSD). Each NMOSD journey has common threads, but the individual experiences are unique and can...reactionscomments
NMO and Covid…AgainThe day I heard Covid was poking its head out again in the news, I got it. My friend went back to New York to take care of her mother...reactionscomments
Warning SignsGetting to know your body is very important when living with a chronic illness like NMOSD (neuromyelitis optica spectrum disorder). With the years I have living with NMOSD I’ve learned...reactionscomments
Stop Telling Me “You’re So Strong”You’re so strong. I don’t know how you do it. You’re so young to be dealing with this. You’re too young to be doing this. With a rare disease diagnosis...reactionscomments
A 13 Hour Flight After Rituximab InjectionI haven’t been abroad for 7 years. I didn’t go anywhere for the last two years because of my NMO (neuromyelitis optica) attack. My mother and I decided earlier on...reactions2comments
Neuromyelitis Optica Spectrum Disorder (NMOSD) in ChildrenNeuromyelitis optica spectrum disorder (NMOSD or NMO) is a rare disorder affecting the nervous system. About 4 percent of all NMOSD cases happen in children. Because childhood NMOSD is so...reactionscomments
Vacationing In A WheelchairIt was 10 years in September since I became paralyzed due to an NMOSD (neuromyelitis optica spectrum disorder) flare up. I finally have both my hips replaced and I am...reactionscomments
Vision Changes and My Mental HealthWell, I made it. It was a long stressful summer of illness all around. From depression to a car of screaming cats, I made it back to New York. Now...reactions1comment
Language BarrierNavigating the healthcare system is hard enough for a regular English-speaking person. But imagine being diagnosed with a rare condition like NMOSD (neuromyelitis optica spectrum disorder) and English not being...reactionscomments
Finding Balance: Navigating Toxic Positivity and Neuromyelitis OpticaLife is a beautiful journey filled with ups and downs. It's natural for us to experience a wide range of emotions as we go through life. However, society's focus on...reactionscomments
Chronic FatigueThe joys of chronic fatigue, the battle that even caffeine can’t win. When I was first diagnosed I would sleep 16 to 20 hours a day, I would fall asleep...reactions2comments
Letting Go of PerfectionismHow does one let go of the idea of perfectionism? With today's world and so much social media, how is it not difficult to compare yourself to others? It’s important...reactionscomments
Hi! I Have NMO. Wanna Go On A Date?Love is something most people want. It’s warm, it’s safe, it’s comfort, and it can be unique. It can be a million little things really. But to me it’s a...reactionscomments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for lunch. You have to take extra precautions because...reactionscomments
Handicap Accessible MinivanOnce I passed my drivers license test to drive with hand controls, I was super excited to start shopping for a vehicle. I was excited to get back to what...reactionscomments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis optica (NMO) attack. I was paralysed from the...reactionscomments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three years of my diagnosis I applied for disability...reactions1comment
NMO Warriors Inspire My Daughter and MeMy daughter and I are truly indebted to this website, and to our community family members, the warriors and there are heartfelt reasons for it… After coming to my senses...reactionscomments
The Exhaustion of An Invisible IllnessLiving with neuromyelitis optica (NMO) for the last 15 years has definitely had its challenges, however, trying to explain how I feel when living with an invisible illness is extremely...reactionscomments
Being Okay With Saying NoI've learned to protect my peace by doing what’s best for me despite how someone else may feel, and not feel bad or be hard on myself. Since becoming sick...reactionscomments
