My Weight Loss With NMOIt has been 11 years since I woke up paralyzed. I was in a wheelchair due to my biggest NMO attack, and...reactionscomments
Navigating Holiday Madness With NMOSDNavigating the holidays can often be difficult for those living with rare diseases like NMOSD. The holiday season can be a joyous...reactionscomments
Handling A New Attack On My EyeWhat happened in March was not how I thought I’d spend my NMO awareness month. I’ve tried writing this several times but...reactions4comments
Let's Talk NMO Attacks and HospitalizationsWe asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due...reactionscomments
Cozy in the Cold GiveawayThis fall season, we want to express our gratitude for the Neuromyelitis-Optica.net community. When you live with neuromyelitis optica spectrum disorder (NMOSD)...reactions2comments
Spasm HorrorsAfter being diagnosed as AQP4+ and getting paralyzed from the waist down, my initial phase of spasms started without any pain. My...reactions2comments
Feeling Stuck Since My DiagnosisI feel stuck since my neuromyelitis optica (NMO) diagnosis. My life has been nothing but a whirlwind of constant change, lack of...reactionscomments
Finding Light In The NMOSD DarknessWhen NMOSD entered my life, two things hit me hard. The first was the lack of information, and the second was isolation. The...reactionscomments
What I Learned From My Recent RelapseMy official journey with NMOSD began in November 2021 when I was told I am AQP4+. Over 3 years, I dealt with...reactionscomments
Abnormal Sensations With NMOSDPeople with neuromyelitis optica spectrum disorder (NMOSD or NMO) are forced to navigate a variety of challenging symptoms: vision loss, headaches, weakness...reactionscomments
You Don't Look SickI was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one...reactions3comments
My Neurogenic BladderOne of my very first symptoms before getting diagnosed with NMO was having problems with my bladder. After experiencing many embarrassing moments...reactions4comments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class...reactions2comments
How Being A Carer With NMO Changed MeMy mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO...reactionscomments
Financial Struggles with NMOSDI was watching an interview and this lady said, “If you have money you can afford to fall sick." And I could...reactions1comment
Is NMO Causing My Thyroid Issues?Writing has been a huge help over the last few years with NMO. It's been a great way to share my personal...reactionscomments
Support One Another: Relationships With NMOSDLiving with neuromyelitis optica spectrum disorder (NMOSD) comes with challenges, both physical and emotional. One major challenge of living with a rare...reactionscomments
Taking Back My VoiceI worked so hard last year coming to terms with my bad eye, and trying to make the best out of life...reactionscomments
Navigation and Accessibility: NMOSD ObstaclesNMOSD came as a real eye-opener for me holistically. I used to see specially-abled people walk by, unaware of the challenges they...reactions3comments
Join the Conversation: Physical Therapy for NMOSDPeople with neuromyelitis optica spectrum disorder (NMOSD) often experience a loss of mobility. For some, physical therapy can help them regain mobility...reactions1comment
