NMO Awareness Month: A Seat at the TableMarch is NMO awareness month! Because this disorder is so rare, those diagnosed with NMO can struggle to be heard and seen...reactionscomments
My Alternative Healing With NMOSDI am a winter person and totally in love with the season, especially the winter rains. I enjoy it a great deal...reactionscomments
Feeling Unlovable With NMOSDThe day I got diagnosed with NMOSD I deemed myself unlovable. In my mind my worth began to diminish. With every comment...reactionscomments
Trying Out Dating Sites With NMOSDDating in 2025 with NMOSD has been a different ballgame. Combining social media expectations, and all the different expectations that men have...reactions2comments
Decision FatigueSymptoms, diagnosis, prognosis, treatment plans, medication, self-care, pain, fatigue, limitations in daily activity, frequent visits to doctors, gaslighting, social isolation, ghosting, relapse...reactions2comments
The Lasting Impact of Medical TraumaMany people are familiar with the term PTSD, or post-traumatic stress disorder. It is typically linked to experiences of physical and/or emotional...reactions1comment
Is It An NMO Attack or Migraine?In my experience in living with NMO and migraines, it has been challenging to differentiate the two. One of my very first...reactionscomments
My Weight Loss With NMOIt has been 11 years since I woke up paralyzed. I was in a wheelchair due to my biggest NMO attack, and...reactionscomments
Navigating Holiday Madness With NMOSDNavigating the holidays can often be difficult for those living with rare diseases like NMOSD. The holiday season can be a joyous...reactionscomments
Handling A New Attack On My EyeWhat happened in March was not how I thought I’d spend my NMO awareness month. I’ve tried writing this several times but...reactions4comments
Let's Talk NMO Attacks and HospitalizationsWe asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due...reactionscomments
Cozy in the Cold GiveawayThis fall season, we want to express our gratitude for the Neuromyelitis-Optica.net community. When you live with neuromyelitis optica spectrum disorder (NMOSD)...reactions2comments
Spasm HorrorsAfter being diagnosed as AQP4+ and getting paralyzed from the waist down, my initial phase of spasms started without any pain. My...reactions2comments
Feeling Stuck Since My DiagnosisI feel stuck since my neuromyelitis optica (NMO) diagnosis. My life has been nothing but a whirlwind of constant change, lack of...reactionscomments
Finding Light In The NMOSD DarknessWhen NMOSD entered my life, two things hit me hard. The first was the lack of information, and the second was isolation. The...reactionscomments
What I Learned From My Recent RelapseMy official journey with NMOSD began in November 2021 when I was told I am AQP4+. Over 3 years, I dealt with...reactionscomments
Abnormal Sensations With NMOSDPeople with neuromyelitis optica spectrum disorder (NMOSD or NMO) are forced to navigate a variety of challenging symptoms: vision loss, headaches, weakness...reactionscomments
You Don't Look SickI was traveling when a wave of NMOSD spasms hit me. I was standing when this happened, and I politely asked one...reactions3comments
My Neurogenic BladderOne of my very first symptoms before getting diagnosed with NMO was having problems with my bladder. After experiencing many embarrassing moments...reactions4comments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class...reactions2comments
