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Have you experienced side effects from NMOSD treatment?

What have your treatments been? What were the side effects? How did you manage the side effects? Share here:

  1. Side effects include numbness in feet and legs, optic neuritis with partial vision loss in one eye, sensitive skin, bladder issues .

    1. I have had numerous UTI's which are side effects from Uizna.

      1. I experience hypersensitivity and neuropathy from the start of apheresis. I also experience hand twitching, drowsiness, and some dizziness from Tizanidine.

        1. I am currently on Enspryng and have been for almost 3 years with no side effects to date( knock on wood). I was on Rituxan for 12.5 years which kept me stable; however, about 8.5 years in got extremely ill, landed up in the hospital with a WBC of 20,000 amongst a ton of other things, the Rituxan almost killed me as it wiped out my IgG levels and I became septic and was in the hospital for almost a month.
          Stay tuned will be sharing that story soon.
          -Sandra Adda Moderator

          1. oh my goodness, I can't wait to hear your story! Thanks for sharing. Forgive my ignorance but what is Enspryng?

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