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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Cold Sensitivity

Short of staying inside all winter, does anyone else suffer with heat/cold extreme sensitivy. I was diagnosed in August 2018, and each...

FeaturedActive 3 days ago

My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I...

FeaturedActive 4 days ago

What was your first symptom?

What was your first symptom of NMO?...

Active 4 days ago

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

Active 4 days ago

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

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The Eyeball Headache

Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and...

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

Holistic and Alternative medicine

Hi NMO Fam, I have tried many things other than medication in the past 4.5 years. I found for myself I had...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

Feeling Helpless—Seeking Key Contacts & Hope for NMO

Hello, This is one of the more difficult posts I’ve ever written. My mother was diagnosed with NMO 15 years ago, back...

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