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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Immunotherapy

I’m newly diagnosed, my Dr wants me to start Rituximab. I’m not sure why he recommended a non FDA approved treatment when there are 3 others that are FDA approved...

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

Have you experienced side effects from NMOSD treatment?

What have your treatments been? What were the side effects? How did you manage the side effects? Share here:...

Rituximab

Is anyone on Rituximab? If so, can you please let me know your experience with it and how it affects you? Thank you. Any info will help....

What is Neuromyelitis Optica and How is it Managed?

Neuromyelitis optica (NMO) is a rare autoimmune disorder that affects the central nervous system, specifically targeting the optic nerves and spinal cord. This condition leads to severe inflammation and demyelination...

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PLEX / Infusion Advice

Hi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...

Uplizna Side effects and reactions

I have been diagnosed with NMOSD few weeks ago and will start Uplizna treatment soon. I was wondering if someone is on it currently that could provide me any insight...

carbamazepine

What do you about this medication? Does it help with the cramps in the legs?...

Pregnancy and Rituximab

I know it’s possible to be pregnant in between rituximab treatments… I did do research and also spoke with my neurologist… but I was just hoping I could hear personal...

Tips with dealing with insurance?

Being a seronegative NMO patient I often get denied for treatments because it doesn't follow FDA guidelines for treatment due to aquaporin 4 neg test result. Feels like we are...

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