Have you had a spinal tap?
Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?
I have had three of them. In 2019 when they were trying to figure out what was wrong with me. they all went pretty good when the needle got to my spine i felt a jolt then nothing all three times.
When I was first in hospital in 2022 they tried 4 spinal taps but they did not work so they decided not to try any more. I saw abiut 4 different Neurologists who said I had TM. Two months my diagnosis changed, I believe because I had very slight imflamnation of the eye.
Two years later my eyes have not been affected and I still have the same prescription. So I sometimes I wonder do I really have NMOSD? I see a NMOSD Consultant once a year ( and we sit and talk and I can ask any questions) but have not had any MRI scans since my first diagnosis in May 2022. I can ring a specialist nurse who emails. my Neurologist and then he responds and the nurse lets me know. My last cimmunication waswhen I'd been to my GP with a voice problem, my GP asjed me to contact my Neurologist. I did his response via the nurse was "I don't think the voice problem was caused by NMOSD" (not very reassuring)
I sometimes feel as though I'm on my own to deal with this. Does anyone out there feel the same?
