I Have Mental Health Issues and It Is OKBy definition, mental health is taking care of psychological, emotional, and social well-being but for me (mine slightly injured mental health) was an inseparable friend that I’ve had for a... By Kshirja Singh3 min readBookmark for laterReactions 0 reactions Comments0 comments
Adapting My Home Fabulously For NMOOver the triumphs and tribulations of dealing with NMO, I’ve had to adapt my home. Thankfully, I have a handy husband who love home projects (said no husband ever) and... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments1 comments
My NMO Relapses Are Slow BurnersMy first neuromyelitis-optica attack seemed to happen rapidly and dramatically. Although I had known something was wrong for months, it was only 48 hours from realizing I couldn’t pee to... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments
Visiting Pakistan For The First Time After My DiagnosisI was born in Scotland, but my mother is from Pakistan, so I have a lot of family there including my grandmother. I haven’t been out of the United Kingdom... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Going Out With FriendsAt just 19, I was diagnosed with NMO, which as I’m sure many of us know are the prime party years. These are the years where you go to college... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
My NMO Diagnosis StoryI knew something was wrong for a couple of months. I kept making appointments with my doctor to discuss new symptoms that were appearing daily. First, it was searing hot... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments1 comments
Public Speaking Gave Me PurposePublic speaking is one of the most feared things in the human race. We are so fearful of the judgment of other people that speaking to large groups of people... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments0 comments
5 Tips For Self-Advocating At The Doctor’s OfficeI've learned a few things about self-advocacy since the beginning of my journey with frequent doctor’s visits. It can be intimidating to ask questions during your medical appointments because you... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
Social Media Gave Me a VoiceBeing diagnosed at 19, I didn’t have much of a voice. Let’s be honest–I was still coming into adulthood, figuring out who I was, and my place in this world... By Avery Allmond4 min readBookmark for laterReactions 0 reactions Comments0 comments
My Story So FarI was told I have NMO but no clinical diagnosis yet. It started with pain in my left eye and blurred vision I went to see an optometrist and she... By CommunityMembera00d161 min readBookmark for laterReactions 0 reactions Comments1 comments
An Emotional Travel Experience Going HomeWell my trip to visit my mother is winding down and it’s been quite a trip. My emotions have been on red alert and life took me down hard. From... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments3 comments
MourningI scroll through this website every day, seeing pain in different types and forms. People will talk about life before their NMO took over. Something that we don't talk enough... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments2 comments
What Is It Like Supporting Someone With NMO? I Interview My Caregiver!My wife is also my caregiver. It’s a fine balancing act between our romantic relationship and the practical support I need due to my Neuromyelitis Optica (NMO). We’d only been... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments1 comments
The Beauty of Stretch MarksFor my whole life, I have been an athlete. I have always been active and tried my best to stay in shape. I also never really paid attention to a... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
The Great Big World and How I Navigate ItAfter my last eye attack from NMO and because of my vision loss, I made an oath to myself that I wanted to see the world before I lost more... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments2 comments
Steroids Saved My Life but Damaged My JointsI turned 39 on February 8th, 2023. I celebrated my birthday in the hospital, recovering from my 2nd hip replacement. In 2012, I first got sick from, unbeknownst to me... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments3 comments
An Advocate Was BornIn May 2016, I received my NMO diagnosis over the phone. “You have something called neuromyelitis optica, and we must treat you immediately.” I was confused, and I thought it... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Mental Health and Journey with NMOFrom the beginning of my NMO diagnosis until now, I’ve recorded every major portion of my rare disease health journey - from the doctors telling me I have an NMOSD... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments3 comments
How NMO Changed My Perspective on Mental HealthPrior to my NMO diagnosis, I never took my mental health seriously. I was always told by doctors to basically "get over it" and that "things will get better." But... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments2 comments
It Was A Really Good DayGood ol' Facebook sure knows how to bring the memories back, good and bad. The little feature on there every day, if you didn’t know, showcases memories from previous years... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments