When You Know, You KnowI wasn’t very sickly as a child, but as I started to get older, I realized that I was having more health issues. People used to think I was a...Reactions0reactionsComments0 comments
Bone Health and NMONeuromyelitis optica spectrum disorder (NMO) is a rare inflammatory disease that affects the spinal cord, eye, and brain. Studies have found that people with NMO have an increased risk for...Reactions0reactionsComments0 comments
The NMO Community We Have Been Waiting for Is HereFor far too long, many who contend with neuromyelitis optica spectrum disorder (NMO), whether their diagnosis was known or unknown to them, have done so lacking the resources they deserve...Reactions0reactionsComments0 comments
NMO in the Eyes of a ChildAs an NMO sufferer, we all too often feel like we are going through this disease alone. We tend to think that since we are the ones that are suffering...Reactions0reactionsComments0 comments
Thank You for Taking Our Survey!We appreciate you taking the time to answer all of our questions. Your responses will help us better understand life with Neuromyelitis Optica (NMO). New here? We invite you to...Reactions0reactionsComments0 comments
AQP4, AQP4 Antibody, and MOG AntibodyThe symptoms that we now recognize as NMO were first described more than 100 years ago. However, without the right technology and testing, it was hard to separate NMO from...Reactions0reactionsComments0 comments
Body Temperature and NMO Symptoms (Uhthoff’s Phenomenon)Increases in body temperature can worsen symptoms of neuromyelitis optica spectrum disorder (NMOSD). This worsening of symptoms with heat is called Uhthoff’s phenomenon. Uhthoff’s phenomenon is commonly used to describe...Reactions0reactionsComments1 comments
Scrambler TherapyMore than 80 percent of people with neuromyelitis optica spectrum disorder (NMO) experience significant pain. This may be pain related directly to NMO or another co-occurring issue. Pain can impact...Reactions0reactionsComments1 comments
Leisurely Self-Care Kit Giveaways Terms and ConditionsOfficial Rules, Terms and Conditions for the Leisurely Self-Care Kit Giveaway NO PURCHASE NECESSARY TO ENTER OR WIN. A PURCHASE DOES NOT INCREASE YOUR CHANCES OF WINNING. VOID WHERE PROHIBITED...Reactions0reactionsComments0 comments
Participating in Research for NMOMedicine is based on research. Clinical trials using real people help determine how safe and effective treatments are. Research into Neuromyelitis optica spectrum disorder (NMO) is currently underway. A lot...Reactions0reactionsComments0 comments
A Conversation Guide for Your Doctor: What to Do When Your Doctor Is Not Familiar with NMONMO is a rare condition. Doctors are not sure of the exact number of people living with NMO. According to different sources, between 4,000 and 15,000 people in the United...Reactions0reactionsComments1 comments
The Relationship Between NMO and LupusNMO is sometimes seen alongside other autoimmune conditions, especially those involving abnormal antibodies. Antibodies are proteins our immune system makes to fight germs. In some cases, antibodies can mistakenly attack...Reactions0reactionsComments0 comments
Vaccines and NMOVaccine safety and efficacy have been topics of debate for a long time. This is especially true for people with pre-existing medical conditions or those who are on immune system-weakening...Reactions0reactionsComments0 comments
What is the MS Hug?The term MS hug is well recognized in the multiple sclerosis (MS) community. How often, long, and strong it occurs can vary. While it is often described in reference to...Reactions0reactionsComments4 comments
Understanding Clinical TrialsA clinical trial is a type of research. Research is the process scientists use to explain how our bodies work or why our bodies stop working well. Clinical trials are...Reactions0reactionsComments0 comments
Clinical Trial GlossaryClinical trials have a language of their own. It helps to understand the common terms used when describing a clinical trial before you sign up. Here are some of the...Reactions0reactionsComments0 comments
What to Know About Participating in a Clinical TrialClinical trials are medical studies that pose a question: Does a new treatment work better than older treatments? Each year, thousands of treatments are tested in controlled experiments called clinical...Reactions0reactionsComments0 comments