Nearly 2 Years Diagnosed with NMOFirst, I had problems with my right arm. I thought I had injured my shoulder worse from a little accident two months before. Then it became problems with my sensitivity... By CommunityMember6a21aa1 min readBookmark for laterReactions 0 reactions Comments1 comments
Anemic NMOFor months I was experiencing an increase in my NMO symptoms. While I communicated this to my neurologist, I had no new lesions to back up a new acute treatment... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments3 comments
1 Whole Year On Rituximab: ReflectingIt has been a whole year since I’ve been on rituximab as my NMO preventative treatment. I’m so grateful for the opportunity to have this treatment available to me for... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments1 comments
The Voice Saying, "It’s Not Real"Being diagnosed with NMO, I’m sure we've all felt and heard from our peers that what was happening to us wasn’t real. For lack of a better phrase, everyone thinks... By Avery Allmond2 min readBookmark for laterReactions 0 reactions Comments2 comments
My Rare Disease Nonprofit - How I Started the Couch Pennies FoundationI watched the YouTube makeup artist Tallia through her entire journey from the minute she posted her first video to the very last. I watched her whole story unfold right... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments1 comments
How my Suffering from NMO Impacted my DaughterI had just gotten out of the hospital. I informed my daughter that 2nd dose of the Corona vaccine had triggered the NMO. Now, my immune system, which was supposed... By Kshirja Singh4 min readBookmark for laterReactions 0 reactions Comments5 comments
Goodbye and Hello AgainAfter being diagnosed with NMO, change has been very scary to me. It took more of my vision with every attack. With each bit of vision loss, I started to... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments3 comments
Bipolar 2, Exposure Therapy and NMOSomething never felt quite right when I was diagnosed with NMO at 19. This was before I was diagnosed with bipolar 2 disorder. Part of the NMO diagnosis process meant... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Few Weeks Before My Next InfusionWith all honesty, the day I was told I would receive the rituximab infusion every six months, I thought it would fix all my problems caused by NMOSD. My neurologist... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments8 comments
My Art TheoryPrior to being diagnosed with NMO, I didn’t have many artistic hobbies. Meaning when I tried to do anything in art class - like paint, draw, pottery, or anything else... By Avery Allmond4 min readBookmark for laterReactions 0 reactions Comments2 comments
NMO In The Eyes of A 9-Year-Old: Before My DiagnosisMy daughter was 2.5 years old when we left Australia. She, her daddy, and I returned to our hometown in India in 2016. Post that, she was and is the... By Kshirja Singh4 min readBookmark for laterReactions 0 reactions Comments0 comments
Going to School With NMO: Taking Closed-Book, Memory Based ExamsIt has been almost three years since I’ve had any real exams in school. For the past two years, due to Covid and my NMO diagnosis, I did not have... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
My Wheelchair is My FreedomNot everyone diagnosed with Neuromyelitis Optica, or NMO, will need to use a wheelchair. However, some people do become full-time wheelchair users, and some people, like me, might use a... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments
Postpartum Before NMOPostpartum is a roller coaster of emotions for most mothers after giving birth. Some can manage on their own. Others need a bit more help to get through. I certainly... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do. For those with an "invisible" illness, or one... By Neuromyelitis-Optica.net Team3 min readBookmark for laterReactions 0 reactions Comments0 comments
Ways I Reduce StressAs time has passed, I have picked on certain things that trigger my body into an NMO flare. My biggest trigger at the moment is stress. It’s unfortunate that I... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments1 comments
The Dream: Couch Pennies, My NMO NonprofitAt the age of 13, I was a young and healthy teenager. At the time, YouTube was still very new. Like many kids my age did at that time, we... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments1 comments
Getting One Step Ahead of NMOA word of advice: be prepared for anything when living with NMO. As scary as this may sound, the fact is that there's simply not enough information to know everything... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments0 comments
The Art of Living with NMOSix years ago, NMO attacked my optic nerves and left me without functional eyesight for nearly a year. In a matter of moments, my entire world was flipped upside-down. Losing... By Chelsey Tucker4 min readBookmark for laterReactions 0 reactions Comments3 comments
Traveling with NMO: My Top 5 TipsLiving with neuromyelitis optica (NMO) doesn’t mean you have to say no to adventure. It just takes a little more planning. As a Scotland-based disability travel blogger, I’m a big... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments