Finding Balance: Navigating Toxic Positivity and Neuromyelitis OpticaLife is a beautiful journey filled with ups and downs. It's natural for us to experience a wide range of emotions as...reactionscomments
Chronic FatigueThe joys of chronic fatigue, the battle that even caffeine can’t win. When I was first diagnosed I would sleep 16 to...reactions2comments
Letting Go of PerfectionismHow does one let go of the idea of perfectionism? With today's world and so much social media, how is it not...reactionscomments
Hi! I Have NMO. Wanna Go On A Date?Love is something most people want. It’s warm, it’s safe, it’s comfort, and it can be unique. It can be a million...reactionscomments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for...reactionscomments
Handicap Accessible MinivanOnce I passed my drivers license test to drive with hand controls, I was super excited to start shopping for a vehicle...reactionscomments
My Lowest Point With NMO, and How a Four-Legged-Friend Saved MeWhen I tell people about my condition, they expect that my lowest point must have been in hospital after my first neuromyelitis...reactionscomments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three...reactions1comment
NMO Warriors Inspire My Daughter and MeMy daughter and I are truly indebted to this website, and to our community family members, the warriors and there are heartfelt...reactionscomments
The Exhaustion of An Invisible IllnessLiving with neuromyelitis optica (NMO) for the last 15 years has definitely had its challenges, however, trying to explain how I feel...reactionscomments
Being Okay With Saying NoI've learned to protect my peace by doing what’s best for me despite how someone else may feel, and not feel bad...reactionscomments
NMO Stigma: "She’s Faking Her Illness For Attention"Recently, I found out from one of my friends that someone from my school had said that I was faking my illness...reactions3comments
Being Present with Neuromyelitis OpticaSince my Neuromyelitis Optica (NMO) diagnosis in 2014, I find it hard to strike the right balance between enjoying a bit of...reactionscomments
What NMO Has Changed In My LifeNMO has changed me in many ways. From odd ways of saving me to taking away things I love. Some things I...reactionscomments
My Anxiety With NMOSometimes, it’s like my brain is in a revolving door. The thoughts spin fast, sometimes slow or not at all. My brain’s...reactionscomments
How NMOSD Affected My Favorite HobbyI remember being 12, hiding in my mother’s room, and using all her makeup without her knowing. I wasn’t good at it...reactions2comments
My journey with NMOAround October 2018, I had this terrible headache for a week. Nothing would help it, two doctor visits and nothing. Eventually, it...reactions4comments
Driving With NMODriving, for me, is an essential part of life. Especially where I live. It’s how I transport my kids to and from...reactionscomments
What Does Self-Advocacy Mean?You constantly hear the phrase that you need to advocate for yourself with doctors and in appointments you hear how you need...reactionscomments
Worsening Vision Confirmed By Eye TestsIt had been a little over a year since my last visit and I was excited for new contacts. My eyes have...reactionscomments
