The Art of Living with NMOSix years ago, NMO attacked my optic nerves and left me without functional eyesight for nearly a year. In a matter of moments, my entire world was flipped upside-down. Losing... By Chelsey Tucker4 min readBookmark for laterReactions 0 reactions Comments3 comments
Traveling with NMO: My Top 5 TipsLiving with neuromyelitis optica (NMO) doesn’t mean you have to say no to adventure. It just takes a little more planning. As a Scotland-based disability travel blogger, I’m a big... By Helen Lear-Grant3 min readBookmark for laterReactions 0 reactions Comments0 comments
So A Blind Man Walks Into A…Why is humor the best medicine? I was inspired to write this piece because of a project I am working on with one of my leads, Olivia. Shockingly, she thinks... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Moments Leading Up to My NMO DiagnosisAnxiety, fear, desperation, confusion, and craziness were the heaviest feelings present in me in early 2016 before my NMO diagnosis. I was having so many symptoms. I couldn’t figure out... By Aldelly V.4 min readBookmark for laterReactions 0 reactions Comments7 comments
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s something you can’t find a lot of information... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments2 comments
How I Manage My NMO Without A CaregiverThe life of someone with NMO without professional support is hard. Dealing with any chronic illness is hard. Not only is it hard on the patient, but it's also just... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments2 comments
My NMO Misdiagnosis Journey, Part TwoRead the first part of Shekita's NMO misdiagnosis journey here. ER visits can be traumatizing, especially if you are not getting results or proper care. Even more so, when you... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments0 comments
A New Start2 years ago I had an attack of never-ending nausea, vomiting, acid reflux, and hiccups. Doctors could not figure out what was triggering this and why it wouldn’t go away... By GabyGee2 min readBookmark for laterReactions 0 reactions Comments2 comments
My NMO Misdiagnosis JourneyI'm sure I'm not the only one that can attest to having difficulty getting diagnosed with NMO for the first time, around when symptoms began manifesting. In our NMO misdiagnosis... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments4 comments
Tips For Your First MRI ScanGetting an MRI scan for your NMO can be scary. It could be because of the size of the machine that you’ll be lying in, but also, if you have... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain the pain that the community feels on a... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments0 comments
How My NMO Diagnosis Changed Our Family DynamicOne would say life with NMO, or any chronic illness, will only affect the person who is diagnosed with it. In my case, that was totally incorrect. My mother spent... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments2 comments
[Closed] "NMO Warrior" YETI® Mug Giveaway!The "NMO Warrior" YETI® Mug Giveaway is now closed. Thank you for your interest! Happy NMO Awareness Month! This year, we are recognizing awareness month with the theme "A Seat... By Neuromyelitis-Optica.net Team1 min readBookmark for laterReactions 0 reactions Comments1 comments
NMO Awareness Month: A Seat at the TableMarch is NMO awareness month! Because this disorder is so rare, those diagnosed with NMO can struggle to be heard and seen by doctors and our communities. This month is... By Neuromyelitis-Optica.net Team1 min readBookmark for laterReactions 0 reactions Comments0 comments
How To Find Credible Health Information OnlineThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health and health... By Editorial Team 2 min readBookmark for laterReactions 0 reactions Comments0 comments
The NMO Experience: Reflecting on 2022It feels like yesterday that we were celebrating the 2022 new year. It was filled with hopes and dreams that whatever difficulties we had to deal with would be a... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments1 comments
Pregnant, NMO, and a Bad WinterPregnancy is a beautiful part of life. It's incredible to think about what our bodies can naturally do on their own. My husband and I were thrilled when I became... By Aldelly V.4 min readBookmark for laterReactions 0 reactions Comments3 comments
Is This New Symptom a Flare - or a New Lesion?Getting to know my body through my journey of living with NMO has been a scary learning experience. I was diagnosed with NMO in 2016, and I’ve experienced so many... By Aldelly V.2 min readBookmark for laterReactions 0 reactions Comments4 comments
Thriving with NMO: The Tools in My BagA peer once told me that I was the busiest person they'd ever seen in a wheelchair, which raised my eyebrows. Just because you are living with NMO, if you're... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments2 comments
Battling My First Winter With NMOI live in Scotland, and we have bad weather in general. Still, this has been one of the coldest winters we have had in a long time. I’m a law... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments5 comments