I Have Mental Health Issues and It Is OKBy definition, mental health is taking care of psychological, emotional, and social well-being but for me (mine slightly injured mental health) was an inseparable friend that I’ve had for a...reactionscomments
Adapting My Home Fabulously For NMOOver the triumphs and tribulations of dealing with NMO, I’ve had to adapt my home. Thankfully, I have a handy husband who love home projects (said no husband ever) and...reactions1comment
My NMO Relapses Are Slow BurnersMy first neuromyelitis-optica attack seemed to happen rapidly and dramatically. Although I had known something was wrong for months, it was only 48 hours from realizing I couldn’t pee to...reactionscomments
Visiting Pakistan For The First Time After My DiagnosisI was born in Scotland, but my mother is from Pakistan, so I have a lot of family there including my grandmother. I haven’t been out of the United Kingdom...reactionscomments
Going Out With FriendsAt just 19, I was diagnosed with NMO, which as I’m sure many of us know are the prime party years. These are the years where you go to college...reactionscomments
My NMO Diagnosis StoryI knew something was wrong for a couple of months. I kept making appointments with my doctor to discuss new symptoms that were appearing daily. First, it was searing hot...reactions1comment
Public Speaking Gave Me PurposePublic speaking is one of the most feared things in the human race. We are so fearful of the judgment of other people that speaking to large groups of people...reactionscomments
5 Tips For Self-Advocating At The Doctor’s OfficeI've learned a few things about self-advocacy since the beginning of my journey with frequent doctor’s visits. It can be intimidating to ask questions during your medical appointments because you...reactionscomments
Social Media Gave Me a VoiceBeing diagnosed at 19, I didn’t have much of a voice. Let’s be honest–I was still coming into adulthood, figuring out who I was, and my place in this world...reactionscomments
My Story So FarI was told I have NMO but no clinical diagnosis yet. It started with pain in my left eye and blurred vision I went to see an optometrist and she...reactions1comment
An Emotional Travel Experience Going HomeWell my trip to visit my mother is winding down and it’s been quite a trip. My emotions have been on red alert and life took me down hard. From...reactions3comments
MourningI scroll through this website every day, seeing pain in different types and forms. People will talk about life before their NMO took over. Something that we don't talk enough...reactions2comments
What Is It Like Supporting Someone With NMO? I Interview My Caregiver!My wife is also my caregiver. It’s a fine balancing act between our romantic relationship and the practical support I need due to my Neuromyelitis Optica (NMO). We’d only been...reactions1comment
The Beauty of Stretch MarksFor my whole life, I have been an athlete. I have always been active and tried my best to stay in shape. I also never really paid attention to a...reactionscomments
The Great Big World and How I Navigate ItAfter my last eye attack from NMO and because of my vision loss, I made an oath to myself that I wanted to see the world before I lost more...reactions2comments
Steroids Saved My Life but Damaged My JointsI turned 39 on February 8th, 2023. I celebrated my birthday in the hospital, recovering from my 2nd hip replacement. In 2012, I first got sick from, unbeknownst to me...reactions3comments
An Advocate Was BornIn May 2016, I received my NMO diagnosis over the phone. “You have something called neuromyelitis optica, and we must treat you immediately.” I was confused, and I thought it...reactionscomments
My Mental Health and Journey with NMOFrom the beginning of my NMO diagnosis until now, I’ve recorded every major portion of my rare disease health journey - from the doctors telling me I have an NMOSD...reactions3comments
How NMO Changed My Perspective on Mental HealthPrior to my NMO diagnosis, I never took my mental health seriously. I was always told by doctors to basically "get over it" and that "things will get better." But...reactions2comments
It Was A Really Good DayGood ol' Facebook sure knows how to bring the memories back, good and bad. The little feature on there every day, if you didn’t know, showcases memories from previous years...reactionscomments