Battling My First Winter With NMOI live in Scotland, and we have bad weather in general. Still, this has been one of the coldest winters we have had in a long time. I’m a law...reactions5comments
My Steroid StoryLet’s talk steroids and NMO. When I was diagnosed in 2017, I was at a hospital with doctors that didn’t know much about NMO, let alone MOG. When I originally...reactions6comments
Intimacy and NMO: Tips and TricksThe conversation around NMO and intimacy can often be seen as taboo, but let's be real: it needs to be had. Here are some personal tips and tricks I've learned...reactions1comment
NMOSDHello everyone! My life changed in July 2019. I woke up one morning with blurry vision. I looked at my TV screen and immediately thought that the TV was about...reactions1comment
My First Day of UniversityRead about how Hali prepared for her first day of school with NMO here. My first class was to start at 9 AM. It took around 45 minutes to get...reactions5comments
Preparing for My First Day of UniversityCOVID-19 hit the world in 2020. The whole of Scotland went into lockdown. All schools shut down. The two-week lockdown ended up lasting for months. That meant my last year...reactionscomments
A TV Show Broke My EmotionsOne thing that gets me every time is others struggling with health issues. I have many people in my life struggling with their health demons. A place that gets me...reactions2comments
The First MRI After My AttackI was referred for an MRI of my brain and neck after a little NMO scare in February of this year. I may have had a relapse. I experienced migraines...reactions2comments
Tips For The Newly DiagnosedIt was the fourth week of September, almost three weeks of being stuck in a hospital room alone and in pain. The doctor told me to call my parents to...reactions1comment
I'm Grateful for NMO, The Disease That Tried to Kill MeI’m grateful for my NMO diagnosis. Reading that, you may say, "huh? Why?" Before I was sick, I thought I had my life planned out. I was going to graduate...reactions5comments
It's Okay To FeelIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up for having a hard time or not feeling...reactions7comments
More of The Nitty Gritty of Living with NMONMO is a rare disease. That means that finding a doctor who can treat you will not go without difficulty. The bigger the city you live in, the better your...reactions2comments
My Appointment With The NeuroThis was my first in-person appointment in Glasgow with my neurologist after going off steroids and starting Rituximab. He's an MS specialist - not an NMOSD specialist. My hospital has...reactions3comments
Where Are All The Accessible Housing Options?For the past nine years, I've lived using a wheelchair. I've realized that there are few housing options for people with a disability or limited mobility. In 2014, after I...reactions2comments
Surgery Number ThreeOn January 12, 2022, I walked into the surgery floor to start the trial process of getting a stimulator placed for my bowel and bladder. I have shared my struggles...reactions2comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar conditions can understand the toll that this stress...reactions3comments
LifeHi. In 2019 I got diagnosed with transverse myelitis. My legs were not moving at all. I went to the er they drain 2 1/2 liters of fluid out of...reactions2comments
My NMO Diagnosis JourneyMy NMO diagnosis journey began in 2007, shortly after I turned 20. I was newly married to my best friend, and we had our whole lives ahead of us. I...reactions3comments
Learning to Deal With My GriefFor the longest time, I've had major issues dealing with the grief of being diagnosed with NMO. I've dealt with a lot of challenging things in my life, and I...reactions4comments
Celebrating Holidays with NMOThis time of year, when everything is joyful and jolly, it seems like NMO always has an unpleasant surprise for me. The holidays are the time of the year when...reactions1comment
