How I Learned to Cope With My NMO DiagnosisI have tried to cope with living with a long-term illness in many different ways since my diagnosis of NMOSD. When I was first diagnosed, I had no idea what... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments2 comments
Losing my YouthGrowing up an athlete, I was always the active one of the bunch. Always wanting to go, go, go, and still having energy. Now, I am the friend that has... By Avery Allmond4 min readBookmark for laterReactions 0 reactions Comments4 comments
NMO and Stomach ProblemsEmotions were high and emotions were low. I felt joy but with a side of misery. If it’s one thing I can’t stand, it's going and finding out what’s wrong... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments1 comments
Recovery from Baclofen Pump Surgery During a PandemicAfter going through surgery to install a Baclofen pump and all its complications in the middle of the pandemic, it was time for recovery. As a first-time user of the... By Aldelly V.3 min readBookmark for laterReactions 0 reactions Comments0 comments
The War Between Being Hot vs. ColdNMOSD sucks. Plain and simple, but out of all of the problems associated with NMO, intolerance to hot and cold has to be the worst. For example, I expect my legs... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments2 comments
Wheelchair Access at Events with NMOI recently went to the P&G Music Festival in Cincinnati. That same weekend was the Cincy Soul taste of Cincinnati. These 2 events bring out crowds of over 100,000 people... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments0 comments
Life On PrednisolonePrednisolone is a steroid medication used to reduce inflammation. It is used for many inflammatory conditions, just as it is used for those with NMOSD. I should be grateful that... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
Life After My NMO DiagnosisSince being diagnosed with NMOSD, I feel like a completely different person. My outlook on life has changed. Health wasn't something I took seriously. My focus on life was just... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
Did NMO Save Me?What if... My brain never shuts up. I can’t tell if it's a blessing or a curse. It races with thoughts of the past, present, and future. Some days it... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Tips for Managing Headaches With NMOHeadaches are one of the most commonly reported symptoms from people with NMO, especially before they have an attack. I am no exception to that fact. I’ve had headaches for... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments1 comments
My Experience With SpasticitySpasticity was one of the first symptoms I experienced before I was diagnosed with NMO. After being diagnosed time passed my spasticity worsen and started taking over not only my... By Aldelly V.2 min readBookmark for laterReactions 0 reactions Comments6 comments
My Journey With NMO: Taking Back My LifeThis will be the final part of this journey so far. A new treatment, fresh starts, a new purpose, and a glimmer of hope. New things started to happen to... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments2 comments
Living with NMOSD SpasmsAs if living with NMOSD isn't challenging enough, there is always that one thing that's worthy of a full conversation. You know that one thing that's so bothersome that you... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments19 comments
To Eat or Not to Eat with NMOTo eat or not to eat because of NMO lethargy should NEVER be a question. Whether one feels too exhausted to think of something to eat or too tired to... By Marlene Austin3 min readBookmark for laterReactions 0 reactions Comments0 comments
A Kidney Infection or Something Else?As we all know, when we're on treatment that suppresses our immune system, we will be at risk of catching infections more frequently. Because of this, the month of June... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments9 comments
Animals: The Best Medicine You Never Knew You NeededSome people call me a "crazy old cat lady." I think I just love animals but yeah, I have the mentality of a "crazy cat lady." If I could, I... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments1 comments
NMO, Medical Trauma, and PTSDDid you know that you can become traumatized by a medical event or related situation and get PTSD? Yea, me either, until it happened to me. As many of you... By Shekita Green3 min readBookmark for laterReactions 0 reactions Comments8 comments
I’m Disabled, Not Deceased!I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm young(ish) and because, for the most part, my... By Monica Jones2 min readBookmark for laterReactions 0 reactions Comments2 comments
NMO and Autoimmune DiagnosesWhen friends learn I have an autoimmune disease they often ask when and how I was diagnosed. My response: “Which time?” Getting a diagnosis for any autoimmune disease is hard... By Marlene Austin5 min readBookmark for laterReactions 0 reactions Comments1 comments