A 13 Hour Flight After Rituximab InjectionI haven’t been abroad for 7 years. I didn’t go anywhere for the last two years because of my NMO (neuromyelitis optica)...reactions2comments
Neuromyelitis-Optica.net Giveaway Terms and ConditionsThese Official Rules apply to any giveaway (or "Promotion") published on NEUROMYELITIS-OPTICA.NET, a Health Union ("Health Union" or "We") owned and operated...reactionscomments
Tips For The Newly DiagnosedIt was the fourth week of September, almost three weeks of being stuck in a hospital room alone and in pain. The...reactions1comment
My Steroid StoryLet’s talk steroids and NMO. When I was diagnosed in 2017, I was at a hospital with doctors that didn’t know much...reactions6comments
The Choice To Accept MyselfThe beginnings of my neuromyelitis optica (NMO) journey led to the loss of one eye. I started noticing changes in my husband's...reactions1comment
Graduating College With NMOI am a legal student. I studied Legal Services in college. I graduated in year 1 of Legal Services with an A...reactions4comments
My NMO AnniversaryA year filled with constant ups and downs. Learning to live life as someone with a long-term illness wasn’t straightforward. When I...reactions4comments
Parenting with NMOSDThe hardest situation to deal with is a chronic disease like neuromyelitis optica spectrum disorder (NMOSD) that continues to debilitate you, to...reactions2comments
Disability BenefitsWhen you have a long-term (chronic) medical condition like NMO, there may be times when you are not able to work. This...reactionscomments
Telling My NMO Story Can Be PainfulThere was a point in my health journey when it’s just bothersome to constantly get questions about my neuromyelitis optica (NMO) diagnosis...reactionscomments
Filter Out the NegativeThere is a saying about tough times: you get to see the true colors of everyone around you. I had seen tough...reactionscomments
The Physical and Emotional Toll of SteroidsMy last neuromyelitis optica (NMO) attack was roughly eight years ago. It was my most terrifying attack yet. At that point my...reactionscomments
Working A Real Job After DiagnosisFor most of my rare disease journey I was a sick and unemployed college dropout with minimal work history. The first three...reactions1comment
Understanding Non-apparent Disabilities in the WorkplaceAbout 1 in 4 American adults live with a disability. Many people living with a disability are able to work and do...reactionscomments
Feeling Discouraged with Physical Therapy ProgressThrough my journey with neuromyelitis optica (NMO), there have been highs and lows. For me it has been 10 years since I...reactionscomments
My Rituxan ExperienceI want to share a piece of my journey with you, a journey that has been significantly altered by one little bottle...reactionscomments
NMOSD Made Me Say Goodbye to High HeelsEvery time I’m asked at a physical therapy consult, “What’s your goal?” my answer is almost always to walk - in high...reactionscomments
I Miss the Joy of RunningBefore neuromyelitis optica spectrum disorder (NMOSD), my whole life I was an athlete. When I got to high school, I decided I...reactions1comment
I’m Disabled, Not Deceased!I know I'm not alone when I say that I feel like I get stereotyped for my disabilities. I think because I'm...reactions2comments
Let's Talk AbleismIt's 2022 and somehow we're still having conversations about ableism. With all the technology and resources available today, I can't help but...reactionscomments
