Preparing for My First Day of UniversityCOVID-19 hit the world in 2020. The whole of Scotland went into lockdown. All schools shut down. The two-week lockdown ended up lasting for months. That meant my last year... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments0 comments
A TV Show Broke My EmotionsOne thing that gets me every time is others struggling with health issues. I have many people in my life struggling with their health demons. A place that gets me... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments2 comments
The First MRI After My AttackI was referred for an MRI of my brain and neck after a little NMO scare in February of this year. I may have had a relapse. I experienced migraines... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments2 comments
Tips For The Newly DiagnosedIt was the fourth week of September, almost three weeks of being stuck in a hospital room alone and in pain. The doctor told me to call my parents to... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments1 comments
I'm Grateful for NMO, The Disease That Tried to Kill MeI’m grateful for my NMO diagnosis. Reading that, you may say, "huh? Why?" Before I was sick, I thought I had my life planned out. I was going to graduate... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments5 comments
It's Okay To FeelIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up for having a hard time or not feeling... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments7 comments
More of The Nitty Gritty of Living with NMONMO is a rare disease. That means that finding a doctor who can treat you will not go without difficulty. The bigger the city you live in, the better your... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments2 comments
My Appointment With The NeuroThis was my first in-person appointment in Glasgow with my neurologist after going off steroids and starting Rituximab. He's an MS specialist - not an NMOSD specialist. My hospital has... By Haleemah Sarwar4 min readBookmark for laterReactions 0 reactions Comments3 comments
Where Are All The Accessible Housing Options?For the past nine years, I've lived using a wheelchair. I've realized that there are few housing options for people with a disability or limited mobility. In 2014, after I... By Teaira-Daniels4 min readBookmark for laterReactions 0 reactions Comments2 comments
Surgery Number ThreeOn January 12, 2022, I walked into the surgery floor to start the trial process of getting a stimulator placed for my bowel and bladder. I have shared my struggles... By Avery Allmond3 min readBookmark for laterReactions 0 reactions Comments2 comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar conditions can understand the toll that this stress... By Haleemah Sarwar3 min readBookmark for laterReactions 0 reactions Comments3 comments
LifeHi. In 2019 I got diagnosed with transverse myelitis. My legs were not moving at all. I went to the er they drain 2 1/2 liters of fluid out of... By CommunityMember1901 min readBookmark for laterReactions 0 reactions Comments2 comments
My NMO Diagnosis JourneyMy NMO diagnosis journey began in 2007, shortly after I turned 20. I was newly married to my best friend, and we had our whole lives ahead of us. I... By Chelsey Tucker4 min readBookmark for laterReactions 0 reactions Comments3 comments
Learning to Deal With My GriefFor the longest time, I've had major issues dealing with the grief of being diagnosed with NMO. I've dealt with a lot of challenging things in my life, and I... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments4 comments
Celebrating Holidays with NMOThis time of year, when everything is joyful and jolly, it seems like NMO always has an unpleasant surprise for me. The holidays are the time of the year when... By Aldelly V.4 min readBookmark for laterReactions 0 reactions Comments1 comments
My Experiences with Problematic DoctorsIt has been over two years that I've lived since finding out I have NMO. I've endured my fair share of experiences with problematic doctors. I'm sure we've all been... By Shekita Green2 min readBookmark for laterReactions 0 reactions Comments2 comments
One Day, One Full Rituximab InfusionI had my first complete rituximab infusion for NMO on the 26th of July, the day before my 20th birthday. Finally, after having to postpone it twice due to catching... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments0 comments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me, I have many triggers which I never expected... By Haleemah Sarwar2 min readBookmark for laterReactions 0 reactions Comments3 comments
Traveling with a Chronic ConditionI used to absolutely love traveling, especially before I was diagnosed. It wasn’t as exhausting as it is now, having a chronic condition like NMO. There are many things I... By Sandra Adda2 min readBookmark for laterReactions 0 reactions Comments3 comments
Relationships and Building Back My ConfidenceBefore life with NMO, I was an outgoing people person. I had many friends all around and a serious relationship. As time went on and NMO showed its true colors... By Dan Marino3 min readBookmark for laterReactions 0 reactions Comments0 comments