NMO, Social Media, and my Mental HealthIt was pre-pandemic when I decided to start sharing my NMO story on social media. I started sharing my story online because...reactions4comments
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain...reactionscomments
Let's Have a Drink!I come from a culture where alcohol is very present in everything we do. If there is a birthday, baby shower or...reactionscomments
Ways I Reduce StressAs time has passed, I have picked on certain things that trigger my body into an NMO flare. My biggest trigger at...reactions2comments
I Feel Alone with a Rare DiseaseLiving with a rare disease like neuromyelitis optica (NMO) has put me in a position to feel alone. When I was first...reactionscomments
Prioritizing My HealthBeing back in New York is almost like a gift. It just feels so right. But also being back means I need...reactionscomments
Record Your JourneyI record everything. Since the day I was diagnosed with neuromyelitis optica (NMO), I have always felt the need to record and...reactionscomments
Medical Gaslighting and MeEver since I was a child, my life has been nothing but a comedy of medical errors. I am one of those...reactions2comments
A Toast To CaregiversIt’s been a long journey with neuromyelitis optica (NMO). I’ve had to learn how to better help my health and learn new...reactionscomments
My First Shopping Experience In My WheelchairConfidence is the most beautiful aura one can wear in public. The feeling of wearing an invisible security blanket around yourself and...reactionscomments
From Misdiagnosis to DiagnosisGetting a diagnosis for a mysterious ailment can feel like searching for a needle in a haystack. It's frustrating, disheartening, and sometimes...reactions2comments
Bring On The Love This HolidayIt’s been several years since my last full blown family holiday season. Now that I think about it, been about five years...reactionscomments
Meeting My Service PupThe first year of my diagnosis was rough. I’ve never felt so alone, so unwanted and so broken in my life. The...reactionscomments
My NMO Christmas ListMy neuromyelitis optica (NMO) wish list: As the iconic song “All I want for Christmas is You” by Mariah Carey goes, it opens...reactionscomments
Trust Your Voice: Understanding Medical Gaslighting and NMOImagine going to the doctor for help, but they don't take your symptoms seriously or tell you it's all in your head...reactionscomments
What to Know About NMOI remember when I was first diagnosed with NMO after I got over the initial devastation, the first thing I did was...reactionscomments
My First Ramadan with NMOSD: My Experience with FastingRamadan is the ninth month of the Islamic year and is considered very special within the Muslim community. During this month, Muslims...reactionscomments
My Journey with NMO Part 6: New Hopes and BeginningsEditor's note: To read part five of Dan's story, click on this link. The year was 2017 and it had already started...reactionscomments
Let's Talk NMO Attacks and Hospitalizations Part 3"When I go to the hospital I have to keep in mind that NMO although is becoming more recognized, it is still...reactions1comment
Let's Talk NMO Attacks and Hospitalizations Part 2We asked three of our neuromyelitis-optica.net advocates, Mo Jones, Chelsey Tucker, and Aldelly Vasquez to describe their recent experiences with hospitalization due...reactionscomments
