The Dream: Couch Pennies, My NMO NonprofitAt the age of 13, I was a young and healthy teenager. At the time, YouTube was still very new. Like many kids my age did at that time, we...reactions1comment
Getting One Step Ahead of NMOA word of advice: be prepared for anything when living with NMO. As scary as this may sound, the fact is that there's simply not enough information to know everything...reactionscomments
The Art of Living with NMOSix years ago, NMO attacked my optic nerves and left me without functional eyesight for nearly a year. In a matter of moments, my entire world was flipped upside-down. Losing...reactions3comments
Traveling with NMOSD: My Top 5 TipsLiving with neuromyelitis optica spectrum disorder (NMOSD) doesn’t mean you have to say no to adventure. It just takes a little more planning. As a Scotland-based disability travel blogger, I’m...reactionscomments
So A Blind Man Walks Into A…Why is humor the best medicine? I was inspired to write this piece because of a project I am working on with one of my leads, Olivia. Shockingly, she thinks...reactionscomments
Moments Leading Up to My NMO DiagnosisAnxiety, fear, desperation, confusion, and craziness were the heaviest feelings present in me in early 2016 before my NMO diagnosis. I was having so many symptoms. I couldn’t figure out...reactions7comments
The Black Rare Disease ExperienceI read an article the other day, and it told a detailed story about being Black and having a rare disease. That’s something you can’t find a lot of information...reactions2comments
How I Manage My NMO Without A CaregiverThe life of someone with NMO without professional support is hard. Dealing with any chronic illness is hard. Not only is it hard on the patient, but it's also just...reactions2comments
My NMO Misdiagnosis Journey, Part TwoRead the first part of Shekita's NMO misdiagnosis journey here. ER visits can be traumatizing, especially if you are not getting results or proper care. Even more so, when you...reactionscomments
A New Start2 years ago I had an attack of never-ending nausea, vomiting, acid reflux, and hiccups. Doctors could not figure out what was triggering this and why it wouldn’t go away...reactions3comments
My NMO Misdiagnosis JourneyI'm sure I'm not the only one that can attest to having difficulty getting diagnosed with NMO for the first time, around when symptoms began manifesting. In our NMO misdiagnosis...reactions4comments
Tips For Your First MRI ScanGetting an MRI scan for NMO can be scary. It could be because of the size of the machine that you’ll be lying in, but also, if you have never...reactionscomments
You Must Understand, Pain is Pain!I wish I could describe the chronic pain from my NMO that I feel every day. I also wish I could explain the pain that the community feels on a...reactionscomments
How My NMO Diagnosis Changed Our Family DynamicOne would say life with NMO, or any chronic illness, will only affect the person who is diagnosed with it. In my case, that was totally incorrect. My mother spent...reactions2comments
[Closed] "NMO Warrior" YETI® Mug Giveaway!The "NMO Warrior" YETI® Mug Giveaway is now closed. Thank you for your interest! Happy NMO Awareness Month! This year, we are recognizing awareness month with the theme "A Seat...reactions1comment
NMO Awareness Month: A Seat at the TableMarch is NMO awareness month! Because this disorder is so rare, those diagnosed with NMO can struggle to be heard and seen by doctors and our communities. This month is...reactionscomments
How To Find Credible Health Information OnlineThere is a lot of health information available on the internet these days. From personal blogs and online magazines to government websites and beyond, advice about your health and health...reactionscomments
The NMO Experience: Reflecting on 2022It feels like yesterday that we were celebrating the 2022 new year. It was filled with hopes and dreams that whatever difficulties we had to deal with would be a...reactions1comment
Pregnant, NMO, and a Bad WinterPregnancy is a beautiful part of life. It's incredible to think about what our bodies can naturally do on their own. My husband and I were thrilled when I became...reactions3comments
Is This New Symptom a Flare - or a New Lesion?Getting to know my body through my journey of living with NMO has been a scary learning experience. I was diagnosed with NMO in 2016, and I’ve experienced so many...reactions4comments