Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 3 days ago

Respiratory Distress

My 30 year old daughter has been struggling for every breath she takes for the past five days. Her neurologist who specializes...

Active 5 days ago

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when...

Physical disability and invisible symptom

Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a...

Holistic and Alternative medicine

Hi NMO Fam, I have tried many things other than medication in the past 4.5 years. I found for myself I had...

Anyone from the UK here?

Hi there. I'm wondering if anyone here is from/living in the UK. I couldn't find a forum or website like this in...

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What was your first symptom?

What was your first symptom of NMO?...

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

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