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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 4 days ago

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

Active 4 days ago

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

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How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

Can Neuromyelitis Optica Occur in Children?

Yes, Neuromyelitis Optica (NMO) can occur in children, though it is relatively rare. Pediatric NMO often presents with similar symptoms to those seen in adults, including sudden vision loss, eye...

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What was your first symptom?

What was your first symptom of NMO?...

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Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...

Dizziness, light headed

Does anyone experience dizziness or light headedness? For me it feels like all the blood is rushing from my head or a “whoosh,” idk. It’s so hard to explain but...

Symptoms in winter

Hey guys! Is anyone flaring because of the weather? what do you do to prevent this?...

Profusely sweating

Ever since I finished 5 days of plasmapheresis I now sweat profusely. I’m talking about when I wake up every morning I am drenched. No amount of deodorant helps during...

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