What helps on bad days?I know I struggle with boredom when I don’t feel well. What are some things you do to help boredom?...Reactions 0 reactions Comments6 repliesCoping
My story of NMOI am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022. I am...Reactions 0 reactions Comments7 repliesCopingDiagnosis
NMO Chronic Pain How are you coping with NMO pain? Any tricks you may want to share to alleviate the symptoms?...Reactions 0 reactions Comments10 repliesCopingTips & Advice
High cholesterol I had my blood test done last week and have been told my cholesterol is high could this be because of being on steroids since last year. I’m a sensible...Reactions 0 reactions Comments1 repliesDiet & NutritionCoping
Self LoveIt’s no secret that NMO can change how your body is. It can definitely mess with mental health. It’s important to have self love even through living with a hateful...Reactions 0 reactions Comments8 repliesCoping
How do you stay positive during difficult times?Life can be full of challenges. What are some things that you do to stay positive when times are tough? Share some tips in the comments ❤️...Reactions 0 reactions Comments0 repliesTips & AdviceCoping
What to expect I got a newly diagnosed this week. And I don’t know what to expect like can you live a normal life ? What are some challenges and what does everyone...Reactions 0 reactions Comments3 repliesDiagnosisCoping
Giving up?What’s one time you wanted to give up on your self dealing with NMOSD? How did you get through? For me it was after I got my 4th rare disease...Reactions 0 reactions Comments2 repliesCoping
Newly diagnosed Hi I’m newly diagnosed early this year so much has changed just got a letter for a appointment for self catheterisation I’ve gone from being active to being not so...Reactions 0 reactions Comments5 repliesCoping