Community Advocates

In order to stay up to date on latest treatments, drug discovery, clinical studies and how to manage neuromyelitis optica every day, brings you frequent articles, blogs, points of view, and advice from leading patient advocates and professional medical experts.

Current advocates

Avery Allmond

Hello my name is Avery and I’m 24 years old. I was diagnosed with NMOSD in 2017, then quickly learned I actually have MOGad. I am a former college track runner and due to the severity of my attack at the time, I gave up the sport I loved. Read more.

Teaira Daniels

My name is Teaira Daniels. I am 38 years old and from Cincinnati, OH. I am a Licensed cosmetologist; I have 1 child my daughter Amariyah who passed away July 1, 2009, 13 days from turning 2 from Pompe Disease. Read more.

Shekita Green

Shekita Green is the mother of 2 teenagers, the wife of an Army Vet and an entrepreneurial spirited businesswoman. In January 2013, she first began experiencing terrible nerve pain, back pain and numbness in her fingers and toes along with piercing headaches. Read more.

Monica Jones

Monica Jones, affectionately known as “Mo” to those close to her is an NMO warrior and a Type 2 Diabetic. Having been a diabetic for over a decade Mo was used to hitting bumps in the road, but it was the NMO diagnosis that knocked her off her feet. Read more.

Daniel Marino

My name is Daniel but go by Dan or Danny. I'm 33 and living in North Carolina, originally from upstate New York. I am a happy cat dad who loves his fur baby. She is my world and cuddle buddy. I am a pretty big Marvel and horror movie nerd. Sadly, nothing scares me anymore. I also enjoy all kinds of music and love to dance and be silly. Read more.

Haleemah Sarwar

Haleemah is a 19-year-old Law Student in Scotland who has been advocating for NMOSD since diagnosis. She was diagnosed with NMOSD in late September of 2021 after a three-month-long fight to get diagnosed. Read more

Chelsey Tucker

Chelsey Tucker resides with her husband, 5 children, and 3 goldendoodles in Nashville TN. Most people would agree that Chelsey Tucker lives anything but an ordinary life. Diagnosed with Multiple Sclerosis at the age of 21, Chelsey began a course of disease modifying treatments in hopes that the MS living inside her body would slow in progression. Read more.

Aldelly Vasquez

My name is Aldelly and I’m fabulously living with neuromyelitis optica (Devic’s disease). A rare demyelinating inflammatory disease that has changed my world. I’m in my early 30’s, a mother of two young active boys, a proud daughter of immigrant parents, a sister and so much more. Read more.

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