Have you felt abnormal sensations?
Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?
Yes, itching, electrical “crawlies” over my brain, strange pin pricks, electrical feelings but not radiating like a compressed nerve, just random here and there. Sometimes I feel like a foot is wet when it’s not or hot when there’s no reason for it to feel hot. Weird vibrations like a tuning fork stuck on a body part. Weird sounds in my ears, tinnitus, but not just ringing… a whole variety of weird sounds. Then visual weirdness from my right eye that has had optic neuritis 3 times… shadows, flashy lights, but retina fine per eye doc. I also experience weird bad smells from time to time. I developed a partial seizure disorder when this all started so the smells and crawlies often preceded the seizure.
Often, I have the sensation of a big ball between my legs in my groin area.
Sharp pains in eyes now and then. Stiffness in legs, numbness in feet. Back paid where bra strap sets. Spine weakness. Long car rides are tough for me. Mowing yard is impossible. I feel like my bones snap, crackle, and pop more. I do receive Uplizna ever six months. So far so good. Hope they come out with a cure😉
I have all the same symptoms as you
It all start after my Covid shots🙁
That's interesting. I didn't get the COVID shot but got a mild case of COVID a couple of times then a few months after the last bout I started noticing tingling. A few months after that the NMO just went crazy. I was in good health so opted not to take the shot and was thankful I wasn't forced to at the VA hospital as it is the military. They'd tried to force the flu shot on us decades ago and I stepped out of the line, didn't get it (no regrets there) then I got out of the Navy a few months later thankfully.
They say that COVID can cause autoimmune diseases. But I've also heard of so many cases of physical problems after taking the shot. My daughter and son-in-law both took the shot but were fine. No one else I knew took it, one of those cases where you could be damned if you took it or damned if you didn't.
