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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 4 days ago

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

Active 7 days ago

Finding meaning and adjusting to life with NMOSD

NMOSD changes everything. Many people go from living full, active lives, to being limited. How have you adjusted? What are some new...

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

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What was your first symptom?

What was your first symptom of NMO?...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a...

Anemia

Anyone suffer from anemia and does it affect your symptoms?...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when...

Profusely sweating

Ever since I finished 5 days of plasmapheresis I now sweat profusely. I’m talking about when I wake up every morning I...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you...

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