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Struggling with vision

I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on drip and plasma exchange but nothing worked since then been on steroids and mycophenolate daily but seen my health in other ways declining ie breathing problems and heart problems and constant lower back pain struggling when walking with all these other things is anyone else going through anything similar

  1. it sounds like you’re going through a lot right now. Have you been able to discuss these issues with your doctor? I hope you’re able to find some answers and relief. Thinking of you, Julie (team member)

    1. Hi My Name is Elida Lopez I also lost my sight in both eyes and I had a lot of pain too I did steroids and plasma exchange And I personally take a lot of vitamin A and a lot of minerals like magnesium and zinc Vitamin D3 B12 I'm better now

      1. has b12 injections helped u a lot

    2. Yes Not only did the B12 injection help me, but alpha lipoic acid injection also helped me. This mineral helped my joint pain I use a lot of vitamins and minerals and with that my life has changed. I don't have those strong pains anymore God Bless You

      1. did the b12 injections stop u from feeling tired and have more energy. Because I have nothing left in my tank at the min always tired ?

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