Feeling Discouraged with Physical Therapy ProgressThrough my journey with neuromyelitis optica (NMO), there have been highs and lows. For me it has been 10 years since I have been in a wheelchair due to my...Reactions0reactionsComments0 comments
Vacationing In A WheelchairIt was 10 years in September since I became paralyzed due to an NMOSD (neuromyelitis optica spectrum disorder) flare up. I finally have both my hips replaced and I am...Reactions0reactionsComments0 comments
Being Okay With Saying NoI've learned to protect my peace by doing what’s best for me despite how someone else may feel, and not feel bad or be hard on myself. Since becoming sick...Reactions0reactionsComments0 comments
Steroids Saved My Life but Damaged My JointsI turned 39 on February 8th, 2023. I celebrated my birthday in the hospital, recovering from my 2nd hip replacement. In 2012, I first got sick from, unbeknownst to me...Reactions0reactionsComments3 comments
Thriving with NMO: The Tools in My BagA peer once told me that I was the busiest person they'd ever seen in a wheelchair, which raised my eyebrows. Just because you are living with NMO, if you're...Reactions0reactionsComments2 comments
Where Are All The Accessible Housing Options?For the past nine years, I've lived using a wheelchair. I've realized that there are few housing options for people with a disability or limited mobility. In 2014, after I...Reactions0reactionsComments2 comments
Wheelchair Access at Events with NMOI recently went to the P&G Music Festival in Cincinnati. That same weekend was the Cincy Soul taste of Cincinnati. These 2 events bring out crowds of over 100,000 people...Reactions0reactionsComments0 comments
Patients Know What WorksOften times when we are diagnosed with a rare disease, we have first been misdiagnosed with multiple other diseases. There are times when patients are put on so many different...Reactions0reactionsComments2 comments
My Daughter's Diagnosis Prepared Me for MineBeing diagnosed with NMO has been quite the journey for me. It took 3 years after I initially began getting sick to officially be diagnosed with the correct illness and...Reactions0reactionsComments5 comments
Recovery Isn't a Race: It's a MarathonWhen I first started outpatient physical therapy in 2014 with Sarah, my physical therapist, I could not get out of my bed by myself let alone stand up. Over the...Reactions0reactionsComments0 comments
Nursing Homes, Rehab Centers, and an Accurate DiagnosisAfter spending three months in the hospital, I was discharged and sent to a nursing home. Thank God I was only there for a week, because I hated that place...Reactions0reactionsComments0 comments
My Long Journey to a Diagnosis: Part 1I have grown to love sharing my journey. At first becoming paralyzed was a hard pill to swallow. I could not believe that my independence was taken away from me...Reactions0reactionsComments0 comments
