Fatigue
Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep 12+ hours. Then after a couple days I gradually can do more. Until I can't but is it a flare? If my body "can" move it just takes all my mental and physical strength to do basic AL'S. Often during these bouts i get a nagging headache not horrible at all just there.Does anyone else experience this? I dont want to seem negative, this journey with NMOSD has actually taught me a lot about inner strength, positivity and people.
you’re not alone in experiencing fatigue, it is really challenging to manage. I wanted to share an article that I think will resonate with you and hopefully offer some helpful tips https://neuromyelitis-optica.net/fatigue. -Julie (team member) I experience the exact same thing, it’s all a part of our journey with NMO. I try vitamins to give me the energy I need during the day, doing things in small increments, taking breaks in between, taking a nap, and just listening to what my body is telling me.
This is so helpful because not sure if Im alone but it makes me feel guilty even though I know that isnt logically
Until Jan. 24, people regularly would comment on how much energy I had. Not now.
