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Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when you are feeling fatigued?...

questionnaire for patients with NMO

Hi everyone, I am administering this questionnaire in several languages and so this is an international study. I am a nursing student and for my thesis I am carrying out...

Recovery from attacks

What methods have helped you to recover from attacks?...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

Featured

Friendships/Relationships With NMO

Hi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...

traveling as a paraplegic with NMOSD

I'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are there other ways besides wearing a brief?...

Physical disability and invisible symptom

Maintaining Quality of Life While Living with NMOSD: Balancing Long-Term Treatment, Visible Disabilities, and Invisible Symptoms...

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