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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

How do you stay active with NMOSD?

NMOSD can impact a person's ability to stay active; How do you stay active?...

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What was your first symptom?

What was your first symptom of NMO?...

Recovery from attacks

What methods have helped you to recover from attacks?...

Advice for someone who is newly diagnosed with NMO

What do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...

What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Finding meaning and adjusting to life with NMOSD

NMOSD changes everything. Many people go from living full, active lives, to being limited. How have you adjusted? What are some new hobbies or activities that you've engaged in to...

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Friendships/Relationships With NMO

Hi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...

My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

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