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Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Anyone from the UK here?

Hi there. I'm wondering if anyone here is from/living in the UK. I couldn't find a forum or website like this in tbe UK so here I am. But life...

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of core strength?...

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Immunotherapy

I’m newly diagnosed, my Dr wants me to start Rituximab. I’m not sure why he recommended a non FDA approved treatment when there are 3 others that are FDA approved...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

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