Skip to Accessibility Menu Skip to Login Skip to Content Skip to Footer

Tell us about your symptom and treatment experience. Take our survey here.

Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Featured

How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly and I only take to Tizanadine. What helps...

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third party functional med lab (Vibrant). It detected moderate...

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

Have you gone to physical therapy for NMOSD?

People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and regain mobility. Have you had experience with physical...

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

Featured

Immunotherapy

I’m newly diagnosed, my Dr wants me to start Rituximab. I’m not sure why he recommended a non FDA approved treatment when there are 3 others that are FDA approved...

What is something you did for yourself today?

What is something you did for yourself today that made you feel good, either both physically or mentally or one or another to take your mind off having NMO and...

Categories

Select a category to find topics that interest you.