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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you deal with maintaining clear boundaries?...

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

How do you stay active with NMOSD?

NMOSD can impact a person's ability to stay active; How do you stay active?...

Recovery from attacks

What methods have helped you to recover from attacks?...

Advice for someone who is newly diagnosed with NMO

What do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...

NMO and alopecia

Is anyone battling with hairloss since their diagnosis of NMO. My hair is suffering terribly. I'm not sure whether it's the NMO or side effects from medications and treatment. I...

What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Finding meaning and adjusting to life with NMOSD

NMOSD changes everything. Many people go from living full, active lives, to being limited. How have you adjusted? What are some new hobbies or activities that you've engaged in to...

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