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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

10 years without relapse

I've had one attack in May 2014, I'm blind in my right eye. I've had Rutuximab and Steroids after first attack. At 7 years my neurologist took it as a...

Will you take our In America survey and help others understand the true impact of NMO?

The In America survey is now closed. To better understand the patient experience and realities of NMO, we are fielding our NMO In America survey. By taking this anonymous survey...

Featured

Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes after having a rare diagnosis diagnosis, back away...

Accommodations in the workplace

Hello, I have had NMO for the last three years. I am a Special Education (mild/moderate) Teacher and have been teaching for 21 years. Within the last 2 years, work...

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third party functional med lab (Vibrant). It detected moderate...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

Psoriasis

Does anyone in this group have psoriasis along with NMOSD? I have both and my dermatologist wants me to take an immunosuppressant for it. I am already on Ultomiris for...

Solaris

I will type those with NMO and 2020 have had 3 to 4 plasma exchanges at the last infusion treatment. I am receiving now is Solaris I cannot tell any...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you currently dating? Do you use dating apps? How...

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