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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Anyone from the UK here?

Hi there. I'm wondering if anyone here is from/living in the UK. I couldn't find a forum or website like this in tbe UK so here I am. But life...

Have you felt abnormal sensations?

Sometimes NMOSD can cause odd and unusual experiences, like burning, tingling and itching. Have you experienced any odd sensations from NMOSD?...

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad first onset of this disease. My first attack...

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of core strength?...

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Immunotherapy

I’m newly diagnosed, my Dr wants me to start Rituximab. I’m not sure why he recommended a non FDA approved treatment when there are 3 others that are FDA approved...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what are their names? (Share a picture!)...

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

What helps you with fatigue?

There are so many reasons for why NMOSD might exhaust someone. What is the cause of your exhaustions? What helps you when you are feeling fatigued?...

Newly diagnosed: How probable are subsequent attacks

Hey everyone! My awesome wife, who is 32 years old, recently received two significant pieces of news: she is pregnant with our second child; but...she has lost most of her...

Tips for showering

Does anyone have tips for making showering less difficult and more enjoyable?...

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