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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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Looking back to Look forward

What's one piece of advice you would give your self pre-diagnosis? What's on piece of advice you would give your future self?...

Neuro͎ myelitis optical spectrum

I just got diagnosed with it. I’m scared...

What to expect

I got a newly diagnosed this week. And I don’t know what to expect like can you live a normal life ?...

Giving up?

What’s one time you wanted to give up on your self dealing with NMOSD? How did you get through? For me it...

Newly diagnosed

Hi I’m newly diagnosed early this year so much has changed just got a letter for a appointment for self catheterisation I’ve...

Profusely sweating

Ever since I finished 5 days of plasmapheresis I now sweat profusely. I’m talking about when I wake up every morning I...

Best Option for occupational therapy for children

Therakids Noida gives you the best facilities for occupational therapy for children. There are so many services available that are occupational therapy...

Tips with dealing with insurance?

Being a seronegative NMO patient I often get denied for treatments because it doesn't follow FDA guidelines for treatment due to aquaporin...

Searching for your symptoms on the internet

Does anyone search for their symptoms on the internet? Do you self-diagnose? Is any of it helpful, or does it cause you...

Interactions with healthcare providers

Has a healthcare provider ever discouraged you or told you that regaining strength, mobility, or eyesight was impossible? How did you handle...

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