How Being A Carer With NMO Changed MeMy mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO attack and recovery. She is a wonderful woman...Reactions0reactionsComments0 comments
Mastering Stress: A Personal Journey to Mental and Physical WellnessI've learned during my journey with NMO that stress can cause a lot of negative reactions in my body. This can have an impact on mental health, but also result...Reactions0reactionsComments0 comments
Blossom's Magic: How My Cat Helped Me Conquer DepressionMany in the NMO community can relate to the feeling of not being understood by others around you. I isolated myself from the world for a while, it’s been a...Reactions0reactionsComments0 comments
Is It An NMO Relapse? New SymptomsA few months ago, I decided to go off my nerve painkillers because I was getting recurrent urinary tract infections (UTIs) and was trying to find the culprit. However, they...Reactions0reactionsComments0 comments
My Tips For Your First Spinal TapI had my spinal tap whilst staying in hospital during my first attack. I wanted to avoid it as much as possible because at the time, every time I moved...Reactions0reactionsComments4 comments
A 13 Hour Flight After Rituximab InjectionI haven’t been abroad for 7 years. I didn’t go anywhere for the last two years because of my NMO (neuromyelitis optica) attack. My mother and I decided earlier on...Reactions0reactionsComments2 comments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for lunch. You have to take extra precautions because...Reactions0reactionsComments0 comments
NMO Stigma: "She’s Faking Her Illness For Attention"Recently, I found out from one of my friends that someone from my school had said that I was faking my illness for attention, when I first made my Instagram...Reactions0reactionsComments3 comments
How NMOSD Affected My Favorite HobbyI remember being 12, hiding in my mother’s room, and using all her makeup without her knowing. I wasn’t good at it at all, but after years of practice I...Reactions0reactionsComments2 comments
Visiting Pakistan For The First Time After My DiagnosisI was born in Scotland, but my mother is from Pakistan, so I have a lot of family there including my grandmother. I haven’t been out of the United Kingdom...Reactions0reactionsComments0 comments
How NMO Changed My Perspective on Mental HealthPrior to my NMO diagnosis, I never took my mental health seriously. I was always told by doctors to basically "get over it" and that "things will get better." But...Reactions0reactionsComments2 comments
Feeling Bad About My NMO DiagnosisThis video is about how I've been feeling recently and another side of how I cope with NMO. Life isn't always about being positive. It's okay to feel down about...Reactions0reactionsComments4 comments
1 Whole Year On Rituximab: ReflectingIt has been a whole year since I’ve been on rituximab as my NMO preventative treatment. I’m so grateful for the opportunity to have this treatment available to me for...Reactions0reactionsComments1 comments
A Few Weeks Before My Next InfusionWith all honesty, the day I was told I would receive the rituximab infusion every six months, I thought it would fix all my problems caused by NMOSD. My neurologist...Reactions0reactionsComments8 comments
Going to School With NMO: Taking Closed-Book, Memory Based ExamsIt has been almost three years since I’ve had any real exams in school. For the past two years, due to Covid and my NMO diagnosis, I did not have...Reactions0reactionsComments0 comments
Ways I Reduce StressAs time has passed, I have picked on certain things that trigger my body into an NMO flare. My biggest trigger at the moment is stress. It’s unfortunate that I...Reactions0reactionsComments2 comments
Tips For Your First MRI ScanGetting an MRI scan for your NMO can be scary. It could be because of the size of the machine that you’ll be lying in, but also, if you have...Reactions0reactionsComments0 comments
How My NMO Diagnosis Changed Our Family DynamicOne would say life with NMO, or any chronic illness, will only affect the person who is diagnosed with it. In my case, that was totally incorrect. My mother spent...Reactions0reactionsComments2 comments
Battling My First Winter With NMOI live in Scotland, and we have bad weather in general. Still, this has been one of the coldest winters we have had in a long time. I’m a law...Reactions0reactionsComments5 comments
My First Day of UniversityRead about how Hali prepared for her first day of school with NMO here. My first class was to start at 9 AM. It took around 45 minutes to get...Reactions0reactionsComments5 comments
