My Journey With NMOSD & DepressionIt's okay to have a bad day, and it's okay to have a bad week. You don't need to beat yourself up...reactions7comments
NMOSD Relapse? Or New Symptoms?I have all these new symptoms and I’m worried it may be a NMOSD relapse. I’m hoping it’s not. A few months...reactionscomments
The Reality of Infusion Fatigue: Why Infusion Days Are Getting HarderI had my rituximab infusion today. Every time I get an infusion, it’s a struggle. From preparing for the treatment, finding a...reactions1comment
Getting Sick While Immunocompromised With NMOSDI caught Covid AGAIN, but after the Covid craze calmed down! I started a new job, and I was working around 35...reactionscomments
My Tips for Your First Spinal Tap: What to Expect and How to PrepareI had my spinal tap whilst staying in hospital during my first NMOSD attack. I wanted to avoid it as much as...reactions7comments
Battling My First Winter With NMOSDI live in Scotland, and we have bad weather in general. Still, this has been one of the coldest winters we have...reactions8comments
Tips For Your First MRI ScanGetting an MRI scan for NMOSD can be scary. It could be because of the size of the machine that you’ll be...reactionscomments
Food Poisoning With A Suppressed Immune SystemLiving with a suppressed immune system is hard. Especially as a student, going to university, taking public transport and eating out for...reactionscomments
Visiting The NMOSD ClinicThe hospital in my city does not have a NMOSD specialist, NMOSD nurses or an NMOSD team. My neurologist is an MS...reactionscomments
Neuromyelitis Optica and the Neuropathic ItchOne of the most troublesome symptoms of my NMOSD is neuropathic pruritis or neuropathic itch. It occurs due to damage to neurons...reactions11comments
How NMOSD Affected My Favorite HobbyI remember being 12, hiding in my mother’s room, and using all her makeup without her knowing. I wasn’t good at it...reactions2comments
My Experience with RituximabI received a letter in the mail stating I was approved for Rituximab for NMO and the date I was to receive...reactions11comments
The Anxiety That Comes With My NMOLiving with a chronic illness like NMO, I have loads of thoughts crossing my mind daily. Only those who suffer from similar...reactions3comments
My 4 NMO TriggersWe all have things that may trigger our NMO symptoms in our day-to-day lives. Triggers are different for everyone. As for me...reactions3comments
The First MRI After My AttackI was referred for an MRI of my brain and neck after a little NMO scare in February of this year. I...reactions2comments
How Being A Carer With NMO Changed MeMy mum is a carer. She has been a carer for around 4 years. She was also my carer during my NMO...reactionscomments
Mastering Stress: A Personal Journey to Mental and Physical WellnessI've learned during my journey with NMO that stress can cause a lot of negative reactions in my body. This can have...reactionscomments
Blossom's Magic: How My Cat Helped Me Conquer DepressionMany in the NMO community can relate to the feeling of not being understood by others around you. I isolated myself from...reactionscomments
Traveling With NMO: TipsFor those who have live with NMOSD for awhile, or for those who have been recently diagnosed, it can be hard to...reactionscomments
A 13 Hour Flight After Rituximab InjectionI haven’t been abroad for 7 years. I didn’t go anywhere for the last two years because of my NMO (neuromyelitis optica)...reactions2comments
