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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

The Rare Disease effect

Having a rare disease is not something that everyone can understand. Oftentimes, the majority of people who don't understand how life changes...

Aquaporin-4 antibodies and disease certainty

Hi everybody. I’m sorry for everybody’s challenges and suffering with NMO. I recently had a neurology screening test performed by a third...

Psoriasis

Does anyone in this group have psoriasis along with NMOSD? I have both and my dermatologist wants me to take an immunosuppressant...

Solaris

I will type those with NMO and 2020 have had 3 to 4 plasma exchanges at the last infusion treatment. I am...

Dating with NMOSD

NMOSD can impact pretty much every facet of our lives, including dating. - How has NMO impacted your dating habits? Are you...

Intimacy with NMOSD

How has NMOSD impacted your ability to be intimate? Share here and help others:...

traveling as a paraplegic with NMOSD

I'm interested in doing some traveling. I'm interested in finding out how does one handle their incontinence when on a trip. Are...

Have you gone to physical therapy for NMOSD?

People with neuromyelitis optica spectrum disorder can often experience a loss of mobility. For some, they attend physical therapy to try and...

What is something you did for yourself today?

What is something you did for yourself today that made you feel good, either both physically or mentally or one or another...

Have you had a spinal tap?

Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...

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