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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

Anemia

Anyone suffer from anemia and does it affect your symptoms?...

Profusely sweating

Ever since I finished 5 days of plasmapheresis I now sweat profusely. I’m talking about when I wake up every morning I...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6...

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you...

Did any of you feel any behavioral change due to nmo?

Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this...

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of...

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

Visiting an NMOSD clinic

Has anyone visited an NMOSD clinic? Have you been seen by a specialist whose focus is entirely on NMOSD? What was that...

My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty...

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