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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Have you experienced heat intolerance?

Some people who have experienced their first attack with NMOSD report experiencing heat intolerance. Have you felt heat intolerance?...

What is something you did for yourself today?

What is something you did for yourself today that made you feel good, either both physically or mentally or one or another to take your mind off having NMO and...

Have you had a spinal tap?

Spinal taps are often used to diagnose NMOSD and other neurological disorders. Have you experienced a spinal tap procedure?...

How is everyone doing???

Hi everyone!!! How is everyone doing?? personally, I have been struggling both mentally and physically. I hope everyone is doing well! I am hosting a zoom tomorrow night at 7:30...

Art with NMOSD

Many people diagnosed with NMOSD decide to start painting or doing other crafts. There are multiple reasons for this, we would like to hear from you. Do you make art?...

Have you experienced side effects from NMOSD treatment?

What have your treatments been? What were the side effects? How did you manage the side effects? Share here:...

How do you stay active with NMOSD?

NMOSD can impact a person's ability to stay active; How do you stay active?...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...

Advocating for yourself

The road to an NMO diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

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