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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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What was your first symptom?

What was your first symptom of NMO?...

Did any of you feel any behavioral change due to nmo?

Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this...

How long will the arm seizures last?

I was diagnosed with MO September 2023. I’ve not progressed to the point where my arms are doing the seizing thing that...

What helps spasms for you?

I wanted to know if anybody has spasms and what you do for them? Personally I have been having them very badly...

"Living with NMO and feeling alone – has anyone been through this?"

Hi everyone, I’m from India and I’ve been living with Neuromyelitis Optica (NMO) for the past 3 years. About 2 years ago...

Has anyone else noticed vision changes before being diagnosed with something like NMO?

Yes, I actually did. My first sign was blurry vision that came on suddenly, along with eye pain whenever I moved my...

Nmosd and pregnancy

Has anyone had a relapse during or after pregnancy? I am afraid and confused if to continue with mine or not. Just...

What do you carry around in your bag?

What do you MAKE SURE you have with you when you leave the house? Something to keep you cool/warm? Medication? Mobility devices?...

What keeps you comfortable with NMOSD?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

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