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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Living with NMOSD

Hi, My name is Hyacinth and I wa officially diagnosed Jan 4 2022. I've been on steroids since then. 2025 Jan I...

Visiting an NMOSD clinic

Has anyone visited an NMOSD clinic? Have you been seen by a specialist whose focus is entirely on NMOSD? What was that...

Struggling with vision

I got diagnosed in 2023 with aquapurina4 positive and nmo lost the vision in my right eye had lots of steroid on...

Do you have emotional support animals?

Living with NMOSD can be really stressful. Do you have any animal companions that support you emotionally? What are they and what...

Back pain

Has anyone experience lower back pain or discomfort?. I was recently diagnosed with NMO, I received my first rituximab treatment and the...

Burning sensation in breast and painful ear ache

Has anyone experienced painful burning in the breast?...

Featured

How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

How do you stay active with NMOSD?

NMOSD can impact a person's ability to stay active; How do you stay active?...

Recovery from attacks

What methods have helped you to recover from attacks?...

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