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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

FeaturedActive 5 days ago

My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...

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What was your first symptom?

What was your first symptom of NMO?...

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What keeps you comfortable with NMO?

Staying comfortable with NMOSD isn't always easy. Especially in the fall and winter months. What helps you stay comfortable?...

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Finding meaning and adjusting to life with NMOSD

NMOSD changes everything. Many people go from living full, active lives, to being limited. How have you adjusted? What are some new hobbies or activities that you've engaged in to...

FeaturedActive 3 days ago

Friendships/Relationships With NMO

Hi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...

Active 3 days ago

NMOSD and Misdiagnosis

Being misdiagnosed can be painful and frustrating. Were you misdiagnosed before you were diagnosed with NMOSD?...

FeaturedActive 5 days ago

How old were you when diagnosed with NMO?

Curious, how old were you when you were originally diagnosed? ...

Active 5 days ago

My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...

Have you experienced neuropathic itch?

Neuropathic itch is a fairly common symptom of people impacted by neurological health conditions, like NMOSD. Is this something you or a loved one has experienced? If so, what helped?...

Anyone from the UK here?

Hi there. I'm wondering if anyone here is from/living in the UK. I couldn't find a forum or website like this in tbe UK so here I am. But life...

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