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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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My NMO Diagnosis Has Changed My Life

My life changed in November 2022, when I consulted for numbness of the right upper limp. After a series of Tests, I was told I had transverse myelitis and further...

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What has NMOSD taught you?

This forum is a space for individuals to share their experiences and insights gained from living with NMOSD. Whether you have been recently diagnosed or have been living with NMOSD...

Active yesterday

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

FeaturedActive 2 days ago

What was your first symptom?

What was your first symptom of NMO?...

Active 6 days ago

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep 12+ hours. Then after a couple days I...

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of core strength?...

Symptoms

I am working full time, and over the past month I am having stiffness in my lower back I get weird tingling sensations in my stomach that seem to wrap...

IVIG to prevent relapse

Is anyone being treated with IVIG and steroids to prevent relapse?...

I Don’t Feel Validated Unless I’m Working!!

I am a nurse and a chef, but right now I don’t know what I’ll be able to do physically for the next few years. Does anyone know of a...

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Do you ever feel the tingles?

Something my doctors haven’t truly figured out and curious if this is an issue around the community. When I start to do chores or a work out I have an...

NMOSD Clinics

I wasn't aware that there are clinics out there for NMOSD:( Can you tell me where they are located???? Please and Thank you:(...

Has anyone else noticed vision changes before being diagnosed with something like NMO?

Yes, I actually did. My first sign was blurry vision that came on suddenly, along with eye pain whenever I moved my eyes. At first, I thought it was just...

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