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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6 month infusion?...

NMO

I’ve recently been diagnosed with NMO. I’ve been paying critical illness insurance for years. MS is covered but my claim has been rejected as NMO is not listed. Can anyone...

Uhthoff coping

Does anyone have/had Uhthoff syndrome and if so ? What helps you deal with...

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PLEX / Infusion Advice

Hi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...

Mental Health

Hi Fam! What are some struggles you have with your mental health and how do you cope? Personally I’ve been struggling with depression, and something that helps me get out...

How long will the arm seizures last?

I was diagnosed with MO September 2023. I’ve not progressed to the point where my arms are doing the seizing thing that makes a little difficult and moving a little...

Difficulty with care

Frustrated, helpless, lonely. Optic Neuritis symptoms, lots of pain with eye movements, color change. All symptoms of optic Neuritis yet clear MRI? 3 positive aqp4 blood tests and disability symptoms...

Vacationing with NMOSD?

NMOSD can create some obstacles in our day-to-day lives; everyone needs a vacation. How does having NMOSD affect your ability to take a vacation? What do you do to make...

Anemia

Anyone suffer from anemia and does it affect your symptoms?...

Participating in a study for NMO

Has anyone been asked to participate in a study on NMO with CorEritas? The end of April after I see my neurologist, I will be meeting with someone to gather...

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