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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

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PLEX / Infusion Advice

Hi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...

Mental Health

Hi Fam! What are some struggles you have with your mental health and how do you cope? Personally I’ve been struggling with depression, and something that helps me get out...

How long will the arm seizures last?

I was diagnosed with MO September 2023. I’ve not progressed to the point where my arms are doing the seizing thing that makes a little difficult and moving a little...

Difficulty with care

Frustrated, helpless, lonely. Optic Neuritis symptoms, lots of pain with eye movements, color change. All symptoms of optic Neuritis yet clear MRI? 3 positive aqp4 blood tests and disability symptoms...

Vacationing with NMOSD?

NMOSD can create some obstacles in our day-to-day lives; everyone needs a vacation. How does having NMOSD affect your ability to take a vacation? What do you do to make...

Anemia

Anyone suffer from anemia and does it affect your symptoms?...

Participating in a study for NMO

Has anyone been asked to participate in a study on NMO with CorEritas? The end of April after I see my neurologist, I will be meeting with someone to gather...

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey? What has helped to make this part of...

How has NMOSD changed your life?

NMOSD can have unpredictable impacts on how we live our lives. What are some ways that NMOSD has impacted your life? What has changed for you?...

Are you a parent with NMOSD?

Many people with NMOSD are parents or have been parents to a child with NMO. How does NMOSD affect the way we parent?...

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