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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Acquiring assistance

i currently live in Florida As a caregiver with a love one with NMO where do we go to get the proper assistance. on dealing with this , where are...

Off topic- watch Celine Dion's story

This is off topic I know, but I just watched Celine Dion's story on amazon " I am Celine Dion" It's a very moving documentary and It made me relate...

Triggers for worsening symptoms?

What triggers have you noticed for worsening or new symptoms? Did any occur after injury, or Covid, or prior to next 6 month infusion?...

NMO

I’ve recently been diagnosed with NMO. I’ve been paying critical illness insurance for years. MS is covered but my claim has been rejected as NMO is not listed. Can anyone...

Uhthoff coping

Does anyone have/had Uhthoff syndrome and if so ? What helps you deal with...

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PLEX / Infusion Advice

Hi! Do you have any advice for anyone who is scheduled to receive their first infusion treatment? ...

Mental Health

Hi Fam! What are some struggles you have with your mental health and how do you cope? Personally I’ve been struggling with depression, and something that helps me get out...

How long will the arm seizures last?

I was diagnosed with MO September 2023. I’ve not progressed to the point where my arms are doing the seizing thing that makes a little difficult and moving a little...

Difficulty with care

Frustrated, helpless, lonely. Optic Neuritis symptoms, lots of pain with eye movements, color change. All symptoms of optic Neuritis yet clear MRI? 3 positive aqp4 blood tests and disability symptoms...

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