My story of NMOI am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022. I am...Reactions 0 reactions Comments3 replies
My long journeyI will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty doctor, then we moved across the country to...Reactions 0 reactions Comments1 replies
Dizziness, light headedDoes anyone experience dizziness or light headedness? For me it feels like all the blood is rushing from my head or a “whoosh,” idk. It’s so hard to explain but...Reactions 0 reactions Comments14 repliesSymptoms
Diet and NMOPlease what kind of diet can be recommended for someone with NMO...Reactions 0 reactions Comments5 replies
FeaturedTo the parents- how did you explain NMO to your children?As someone with no children, i'm wondering how all the parents here explained NMO to your children. We know NMO is hard to explain to doctors. So how have you...Reactions 0 reactions Comments2 repliesTips & AdviceFriends & FamilyCaregiving
FeaturedMarch is NMO Awareness Month!March is NMO awareness month! The neuromyelitis-optica.net team is celebrating with the theme, "A Seat at the Table". A seat at the table represents an opportunity to be heard and...Reactions 0 reactions Comments0 repliesAwareness
riximyoHas anybody used this drug and what have the side effects been like?...Reactions 0 reactions Comments2 replies
Am I okay or not ???Ever since the onset of heavy winters here especially in December, I have been experiencing bad stiffness, joint pain, high levels of anxiety, and a burning sensation in my spinal...Reactions 0 reactions Comments0 replies
Symptoms of NMOSDHow does this disease affect the resp system. They say in comorbidities this can cause death....Reactions 0 reactions Comments0 repliesAwarenessPainParalysis & Mobility
FeaturedShare a piece of advice or a quote that's helped you 💚We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...Reactions 0 reactions Comments27 repliesTips & Advice