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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Rituximab

Is anyone on Rituximab? If so, can you please let me know your experience with it and how it affects you? Thank you. Any info will help....

Managing weight

I stopped eating carbs and sugars. I have lost a lot of weight. How do you manage weight? Can I have carbs once in a while?...

Can Neuromyelitis Optica Occur in Children?

Yes, Neuromyelitis Optica (NMO) can occur in children, though it is relatively rare. Pediatric NMO often presents with similar symptoms to those seen in adults, including sudden vision loss, eye...

What is Neuromyelitis Optica and How is it Managed?

Neuromyelitis optica (NMO) is a rare autoimmune disorder that affects the central nervous system, specifically targeting the optic nerves and spinal cord. This condition leads to severe inflammation and demyelination...

Just diagnosed at 70 years old. Is anyone like me out there?

I was just diagnosed yesterday. I really didn’t think I had it so it was a shock. I read most people get it in their thirties and forties. My symptoms...

Advocating for yourself

The road to an NMOSD diagnosis can be a long and frustrating one. So many people are dismissed by medical professionals, only to be told that their symptoms are all...

Working with Pain

Hi friends! I’ve been having a hard time with working a regular job due to the pain I get. Does anyone else deal with thiS?...

What about caregiving?

Caregiving can be challenging, esspecially with a condition as difficult and rare as NMOSD. What has your experience been like caregiving for NMOSD? What are your needs, as a caregiver?...

Acquiring assistance

i currently live in Florida As a caregiver with a love one with NMO where do we go to get the proper assistance. on dealing with this , where are...

Off topic- watch Celine Dion's story

This is off topic I know, but I just watched Celine Dion's story on amazon " I am Celine Dion" It's a very moving documentary and It made me relate...

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