FeaturedNMO & LupusHi, my daughter was diagnosed with NMO in 2012 after a false diagnosis of MS at age 16. Today she is having blood test to see if she now also...reactions5replies
bloated tummy from steroidsHello Guys it’s been a while am off from steroids but my tummy still bloated. Did anyone encounter same problem? how long will this get deflated? Thank you...reactions4replies
FeaturedThe Eyeball Headache Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and painful. The kind of pain that no amount...reactions10repliesPain
My husbandMy husband will be 70 this month. He has struggled with “neuropathic itching“ for years. He's gone to Dermatologists, neurologists, and pain management specialists. He's tried Gabapentin, Cymbalta, Valium, Allergy...reactions1reply
carbamazepineWhat do you about this medication? Does it help with the cramps in the legs?...reactions1replyTreatment & MedicationCopingTips & Advice
Burning sensation and cramping in legI have been diagnosed with nmo in March 2023. I got rituximab and just got off prednisone. But I have been experiencing these attacks where one leg feels like it’s...reactions2replies
Did any of you feel any behavioral change due to nmo?Lately I’ve been very impatient about everything, rude and angry to myself and to the people I love. Also I have this damn care attitude. I take risk often and...reactions2repliesAwareness
TENS unitDoes anyone use a TENS unit for back pain (or any pain)? I know TENS unit stimulates nerves and unsure if this is safe to use on the back for...reactions1reply
Neuro OpticaBeen diagnosed with: Optic Neurits, torturous version n left eye& somethings wrapped bg with your left eye.All by Optlamoligists. Now I’ve just been told that I don’t have any of...reactions2repliesDiagnosis
FeaturedMay is Mental health awareness monthAs a patient with nmo I've had my fair share of mental breakdown but my family's support always helps me bounce back up. I always comfort myself with an over...reactions3repliesTips & AdviceAwarenessMental Health