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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey? What has helped to make this part of...

How has NMOSD changed your life?

NMOSD can have unpredictable impacts on how we live our lives. What are some ways that NMOSD has impacted your life? What has changed for you?...

Are you a parent with NMOSD?

Many people with NMOSD are parents or have been parents to a child with NMO. How does NMOSD affect the way we parent?...

I am having problems with sexual activity

I'm having a problem with maintaining sexual activity due to NMO despite taking some pills which were recommended by my GP....

What are the best preventative treatments for NMO?

Hello everyone, I've been recently diagnosed with NMO. I'm in Canada. I've been discussing treatments options with my neurologist. He says Soliris/Ultomiris is the best, but it is quite expensive...

Holistic and Alternative medicine

Hi NMO Fam, I have tried many things other than medication in the past 4.5 years. I found for myself I had better pain management with alternative therapies. What are...

Holidays, nmo and stress

The holidays are upon us.I know I'm always stresses out during the holiday season. I'm looking for some tips on the following questions: 1- How does the holiday stress affect...

Ableism and discrimination

Ableism is defined as "the discrimination or prejudice against individuals with disabilities.” Has anyone experienced this type of discrimination before? If you're comfortable, share some of your experiences in this...

NMO Diet Adjustment

Have you changed your diet due to your NMO diagnosis? How has it helped you?...

Stress

Does Stress and /or Anxiety affect your symptoms with NMOSD?...

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