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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Ableism and discrimination

Ableism is defined as "the discrimination or prejudice against individuals with disabilities.” Has anyone experienced this type of discrimination before? If you're comfortable, share some of your experiences in this...

NMO Diet Adjustment

Have you changed your diet due to your NMO diagnosis? How has it helped you?...

Stress

Does Stress and /or Anxiety affect your symptoms with NMOSD?...

Uplizna Side effects and reactions

I have been diagnosed with NMOSD few weeks ago and will start Uplizna treatment soon. I was wondering if someone is on it currently that could provide me any insight...

Pain

I got pain my nerves feeling tired...

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NMO & Lupus

Hi, my daughter was diagnosed with NMO in 2012 after a false diagnosis of MS at age 16. Today she is having blood test to see if she now also...

bloated tummy from steroids

Hello Guys it’s been a while am off from steroids but my tummy still bloated. Did anyone encounter same problem? how long will this get deflated? Thank you...

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The Eyeball Headache

Hi NMOSD fam!! Let’s talk about the eyeball headache! That intense pain in the back of your eye that’s so deep and painful. The kind of pain that no amount...

My husband

My husband will be 70 this month. He has struggled with “neuropathic itching“ for years. He's gone to Dermatologists, neurologists, and pain management specialists. He's tried Gabapentin, Cymbalta, Valium, Allergy...

carbamazepine

What do you about this medication? Does it help with the cramps in the legs?...

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