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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Neuro͎ myelitis optical spectrum

I just got diagnosed with it. I’m scared...

What to expect

I got a newly diagnosed this week. And I don’t know what to expect like can you live a normal life ? What are some challenges and what does everyone...

Giving up?

What’s one time you wanted to give up on your self dealing with NMOSD? How did you get through? For me it was after I got my 4th rare disease...

What do you carry around in your bag?

What do you MAKE SURE you have with you when you leave the house? Something to keep you cool/warm? Medication? Mobility devices? Tell us what you carry in your bag....

Newly diagnosed

Hi I’m newly diagnosed early this year so much has changed just got a letter for a appointment for self catheterisation I’ve gone from being active to being not so...

Profusely sweating

Ever since I finished 5 days of plasmapheresis I now sweat profusely. I’m talking about when I wake up every morning I am drenched. No amount of deodorant helps during...

Best Option for occupational therapy for children

Therakids Noida gives you the best facilities for occupational therapy for children. There are so many services available that are occupational therapy, physical therapy, speech therapy, and counseling. They can...

Tips with dealing with insurance?

Being a seronegative NMO patient I often get denied for treatments because it doesn't follow FDA guidelines for treatment due to aquaporin 4 neg test result. Feels like we are...

Searching for your symptoms on the internet

Does anyone search for their symptoms on the internet? Do you self-diagnose? Is any of it helpful, or does it cause you more anxiety? What did the internet first tell...

Interactions with healthcare providers

Has a healthcare provider ever discouraged you or told you that regaining strength, mobility, or eyesight was impossible? How did you handle that? Did you believe them, or did you...

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