Forums

Read conversations, start a discussion, and connect with others about neuromyelitis optica.

Active 3 days ago

Symptoms

I'm wondering if anyone has experienced loss of legs and been confined to a wheelchair, also both eyes blurring and loss of...

Active 4 days ago

Is your partner also your caregiver ?

Often the roles are mesh together & its forgotten that before they became your caregiver they were your partner. How do you...

Active 4 days ago

Your diagnosis in one word

Hi NMO fam, If you could describe your diagnosis in one word, what would it be?...

Active 4 days ago

Visiting an NMOSD clinic

Has anyone visited an NMOSD clinic? Have you been seen by a specialist whose focus is entirely on NMOSD? What was that...

Active 5 days ago

My long journey

I will be 70 in August and I have been dealing with first a diagnosis of Idiopathic MS by one MS Specialty...

Active 5 days ago

Having a severe first attack

I have had only one attack, but it was major. I was wondering how many people out there had a real bad...

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Immunotherapy

I’m newly diagnosed, my Dr wants me to start Rituximab. I’m not sure why he recommended a non FDA approved treatment when...

Accessibility and NMOSD

For those with NMO, getting around can be particularly challenging. Since being diagnosed have you struggled with accessibility in your NMOSD journey?...

Fatigue

Does anyone else suffer with extreme fatigue? My brain wants to do stuff but physically I am exhausted. Some days I sleep...

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Cold Sensitivity

Short of staying inside all winter, does anyone else suffer with heat/cold extreme sensitivy. I was diagnosed in August 2018, and each...

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