Whats the best way? Is it to talk to my friend or my partner or mom/dad? Or just keep it to myself? I am not sure talking with them will help because they won’t...Reactions0reactionsComments4 repliesAwareness
What helps on bad days?I know I struggle with boredom when I don’t feel well. What are some things you do to help boredom?...Reactions0reactionsComments6 repliesCoping
Pregnancy and Rituximab I know it’s possible to be pregnant in between rituximab treatments… I did do research and also spoke with my neurologist… but I was just hoping I could hear personal...Reactions0reactionsComments2 repliesTreatment & MedicationSide Effects
My story of NMOI am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022. I am...Reactions0reactionsComments7 repliesCopingDiagnosis
Community Forum: Advice for someone who is newly diagnosed with NMOWhat do you wish someone had told you when you were first diagnosed? Share your tips and insights with new community members in the comments 💚...Reactions0reactionsComments2 repliesNewly DiagnosedTips & AdviceDiagnosis
what is the best product you've bought?Wha is the best product you bought that has helped you live with nmo?...Reactions0reactionsComments1 replies
Tips for showeringDoes anyone have tips for making showering less difficult and more enjoyable?...Reactions0reactionsComments1 repliesAssistive DevicesCopingParalysis & MobilityTips & Advice
NMO and AlcoholHave you tried drinking alcohol since you were first diagnosed with NMO? Have you been advised not to? If you have drank, have you noticed a difference in how you...Reactions0reactionsComments7 repliesSide EffectsFriends & Family
My story of NMOI am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022. I am...Reactions0reactionsComments3 replies
Dizziness, light headedDoes anyone experience dizziness or light headedness? For me it feels like all the blood is rushing from my head or a “whoosh,” idk. It’s so hard to explain but...Reactions0reactionsComments14 repliesSymptoms