What to expect I got a newly diagnosed this week. And I don’t know what to expect like can you live a normal life ? What are some challenges and what does everyone...Reactions 0 reactions Comments3 repliesDiagnosisCoping
Giving up?What’s one time you wanted to give up on your self dealing with NMOSD? How did you get through? For me it was after I got my 4th rare disease...Reactions 0 reactions Comments2 repliesCoping
What do you carry around in your bag?What do you MAKE SURE you have with you when you leave the house? Something to keep you cool/warm? Medication? Mobility devices? Tell us what you carry in your bag....Reactions 0 reactions Comments0 repliesAssistive Devices
Newly diagnosed Hi I’m newly diagnosed early this year so much has changed just got a letter for a appointment for self catheterisation I’ve gone from being active to being not so...Reactions 0 reactions Comments5 repliesCoping
Profusely sweatingEver since I finished 5 days of plasmapheresis I now sweat profusely. I’m talking about when I wake up every morning I am drenched. No amount of deodorant helps during...Reactions 0 reactions Comments1 repliesSymptoms
Best Option for occupational therapy for children Therakids Noida gives you the best facilities for occupational therapy for children. There are so many services available that are occupational therapy, physical therapy, speech therapy, and counseling. They can...Reactions 0 reactions Comments0 repliesHealthcare TeamMental Health
Tips with dealing with insurance?Being a seronegative NMO patient I often get denied for treatments because it doesn't follow FDA guidelines for treatment due to aquaporin 4 neg test result. Feels like we are...Reactions 0 reactions Comments2 repliesTips & AdviceTreatment & MedicationWork & Employment
Searching for your symptoms on the internetDoes anyone search for their symptoms on the internet? Do you self-diagnose? Is any of it helpful, or does it cause you more anxiety? What did the internet first tell...Reactions 0 reactions Comments6 repliesDiagnosis
FeaturedFriendships/Relationships With NMOHi NMO fam! Today I wanted to open up the conversation about how NMO has affected your relationships/friendships. Personally for me, my diagnosis was a lot for people to deal...Reactions 0 reactions Comments13 repliesRelationships & Friendships
Interactions with healthcare providersHas a healthcare provider ever discouraged you or told you that regaining strength, mobility, or eyesight was impossible? How did you handle that? Did you believe them, or did you...Reactions 0 reactions Comments0 repliesHealthcare Team