Dizziness, light headedDoes anyone experience dizziness or light headedness? For me it feels like all the blood is rushing from my head or a “whoosh,” idk. It’s so hard to explain but...Reactions0reactionsComments14 repliesSymptoms
Diet and NMOPlease what kind of diet can be recommended for someone with NMO...Reactions0reactionsComments5 replies
FeaturedTo the parents- how did you explain NMO to your children?As someone with no children, i'm wondering how all the parents here explained NMO to your children. We know NMO is hard to explain to doctors. So how have you...Reactions0reactionsComments2 repliesTips & AdviceFriends & FamilyCaregiving
FeaturedMarch is NMO Awareness Month!March is NMO awareness month! The neuromyelitis-optica.net team is celebrating with the theme, "A Seat at the Table". A seat at the table represents an opportunity to be heard and...Reactions0reactionsComments0 repliesAwareness
riximyoHas anybody used this drug and what have the side effects been like?...Reactions0reactionsComments2 replies
FeaturedWill you take our In America survey and help others understand the true impact of NMO?NMO is a rare autoimmune disorder affecting about 16,000 people in the US. To better understand the patient experience and realities of NMO, we are fielding our 2nd NMO In...Reactions0reactionsComments0 replies
Am I okay or not ???Ever since the onset of heavy winters here especially in December, I have been experiencing bad stiffness, joint pain, high levels of anxiety, and a burning sensation in my spinal...Reactions0reactionsComments0 replies
Symptoms of NMOSDHow does this disease affect the resp system. They say in comorbidities this can cause death....Reactions0reactionsComments0 repliesAwarenessPainParalysis & Mobility
FeaturedShare a piece of advice or a quote that's helped you 💚We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...Reactions0reactionsComments27 repliesTips & Advice
FeaturedMeet and Greet! When were you diagnosed!? 💚Hi! I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008. Nice to meet you!...Reactions0reactionsComments25 repliesFriends & Family