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Read conversations, start a discussion, and connect with others about neuromyelitis optica.

My story of NMO

I am glad to be part of this family. I had been looking for a community like this since I was diagnosed with Neuromylitis optica in November 2022. I am...

Dizziness, light headed

Does anyone experience dizziness or light headedness? For me it feels like all the blood is rushing from my head or a “whoosh,” idk. It’s so hard to explain but...

Diet and NMO

Please what kind of diet can be recommended for someone with NMO...

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To the parents- how did you explain NMO to your children?

As someone with no children, i'm wondering how all the parents here explained NMO to your children. We know NMO is hard to explain to doctors. So how have you...

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March is NMO Awareness Month!

March is NMO awareness month! The neuromyelitis-optica.net team is celebrating with the theme, "A Seat at the Table". A seat at the table represents an opportunity to be heard and...

riximyo

Has anybody used this drug and what have the side effects been like?...

Am I okay or not ???

Ever since the onset of heavy winters here especially in December, I have been experiencing bad stiffness, joint pain, high levels of anxiety, and a burning sensation in my spinal...

Symptoms of NMOSD

How does this disease affect the resp system. They say in comorbidities this can cause death....

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Share a piece of advice or a quote that's helped you 💚

We know that NMO can be a rollercoaster ride. What is an inspirational quote OR word of advice that has helped you navigate through rough times? You never know who...

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Meet and Greet! When were you diagnosed!? 💚

Hi! I’m Sandra, I was misdiagnosed in 2007 with MS and properly diagnosed with NMO in 2008. Nice to meet you!...

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